The HDSA Podcast

Let's Talk About HD Awareness Month Part 2

Send us Fan Mail [https://www.buzzsprout.com/2092862/fan_mail/new] In this episode of Let’s Talk About HD, hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful conversation about Huntington’s disease, community, connection, and the experiences that shape the HD journey. Together, they share personal perspectives, reflect on the importance of support, and highlight the power of open conversation in helping families feel seen, heard, and less alone. This episode reminds us that every HD story matters—and that by talking about HD, we continue to build awareness, understanding, and hope. Don't forget to follow us on social media!

Let's Talk About HD Awareness Month with Tam, Allison & MaryAnn

Send us Fan Mail [https://www.buzzsprout.com/2092862/fan_mail/new] Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn In this episode of Let’s Talk About HD, we recognize Huntington’s Disease Awareness Month with a meaningful conversation featuring Tam, Allison, and MaryAnn. Together, they reflect on the importance of raising awareness, and discuss how storytelling, advocacy, and community support help shine a light on the experiences of HD families. Throughout the conversation, Tam, Allison, and MaryAnn highlight why awareness matters, not only in May, but all year long, as HDSA continues working to provide help for today and hope for tomorrow for everyone impacted by Huntington’s disease. Don't forget to follow us on social media!

Let's Talk About HD with Tam, Allison & MaryAnn

Send us Fan Mail [https://www.buzzsprout.com/2092862/fan_mail/new] Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community.  Don't forget to follow us on social media!

S3:E1- Let's Talk About Volunteering with HDSA

Send us Fan Mail [https://www.buzzsprout.com/2092862/fan_mail/new] In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s mission, this conversation is packed with inspiration and practical advice. Don't forget to follow us on social media!

S2:E5 Let's Talk about the HD ELPFDD Meeting

Send us Fan Mail [https://www.buzzsprout.com/2092862/fan_mail/new] In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps. Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities identified during the meeting. Whether you attended the ELPFDD or are catching up on what you missed, this episode is packed with valuable insights to keep you informed and engaged in the journey ahead. Tune in to stay in the know and discover how you can contribute to the path forward! Don't forget to follow us on social media!