From Checkbox to Change: Making Patient Voices Count

From Checkbox to Change: Making Patient Voices Count

Healthcare is the only place where the consumer is not in the middle of the decision-making. On the new episode of Patient to Purpose, we’re joined by Sabrina Hanna, b.sc [https://www.linkedin.com/in/sabrina-hanna-advocacy/] (@CancerCollab) to talk about the reality of navigating the healthcare system as a patient advocate. From the “checkbox” culture of medical meetings to the wait lists for drug listings. Coverage ≠ Access Patient experience IS data We need a 21st not 20th century lens Resources: The Cancer Collaborative [https://www.linkedin.com/company/cancercolab/?viewAsMember=true] Rethinking how we define value in healthcare [https://forms.office.com/pages/responsepage.aspx?id=1XHfWByANkKofUX9ay22I3yoEbDPw2hGvexsbiQzRuRUN0dFOE1HTEdRR1RLOEY0MTFaN0ZVSjYzOS4u&route=shorturl] Rethinking Health Technology Assessments [https://www.cancercolab.ca/_files/ugd/24863f_040d285cc7444028bf9ae0f271e85d73.pdf] Learn more about our show [https://erohealthcommunications.com/patient-to-purpose/] and submit ideas #PatientToPurpose #HTA #PatientAdvocacy #LivedExperience

Science Hasn't Changed Politics Has: When Science Meets Emotion

In this episode of Patient to Purpose, Erica [https://www.linkedin.com/in/ericabersin/] & Stefan [https://www.linkedin.com/in/stefanwalzer/] dive into the vaccine debate, misinformation, and the tension between science, politics, and public opinion. From the history of immunization to the lessons of COVID-19, they unpack why public health works best when it’s trusted, and what happens when evidence gets drowned out by emotion, algorithms, and ideology. A candid conversation about prevention, access to care, and the collective responsibility behind better health outcomes. Resources: Smallpox vaccine U.S. [https://historyofvaccines.org/blog/washingtons-war-against-smallpox-revolutionary-inoculation-campaign/] History of mRNA [https://publichealth.jhu.edu/2021/the-long-history-of-mrna-vaccines] About the 1918 flu [https://www.paho.org/en/who-we-are/history-paho/purple-death-great-flu-1918] Learn more about our show [https://erohealthcommunications.com/patient-to-purpose/] and submit ideas #PatientToPurpose #HealthPolicy #TrustScience #VaccinesWork #HealthcareForAll

Living Proof: Telling Your Story to Make a Difference

In this episode we speak with Tim Cage [https://www.linkedin.com/in/tim-cage-abb00a9/] and John Capecci [https://www.linkedin.com/in/johncapecci/] who have been partners for 20 years in Living Proof Advocacy. Tim & John unpack the emotional, psychological, and identity shifts involved in deciding to go public with a lived health experience, especially in the context of invisible illness and stigma. The discussion also highlights cultural differences in advocacy across countries, the importance of patient-centric approaches in healthcare and pharma, and how individual stories bring clinical data and outcomes to life. What’s your why? Six words to articulate why advocacy is for you. Resources: Living Proof Advocacy [https://www.livingproofadvocacy.com/online-course] (Patient to Purpose listeners receive 10% off use code P2P10) Writing to Change the World [https://marypipher.com/writing-to-change-the-world/] by Mary Pipher Learn more about our show [https://erohealthcommunications.com/patient-to-purpose/] and submit ideas #PatientToPurpose #LivingProofAdvocacy #PatientAdvocacy #LivedExperience #StoryTellingForChange

In the U.S. Health Insurance Is A Privilege

In this episode Erica [https://www.linkedin.com/in/ericabersin/] & Stefan [https://www.linkedin.com/in/stefanwalzer/] break down the “mind-boggling” complexities of the U.S. health insurance system, where employer-sponsored plans often “handcuff” people to their jobs. We explore the frustrations of navigating “in-network” providers, the hurdles of prior authorization, and the common misconceptions regarding Medicare premiums and income. Drawing from her own experiences after 30 years of working in healthcare, 17 of those living with multiple sclerosis, and being a board-certified patient advocate, Erica emphasizes the importance of staying informed and using grassroots involvement to demand a system that works with patients, rather than just for them. Resources: Center for Infectious Disease Research & Policy [https://www.cidrap.umn.edu/] American Academy of Pediatrics [https://www.aap.org/?srsltid=AfmBOoqxX4GYMQ3wXCp7ys8uIoI2JIigDVFMI7T5mMlpZrxJMSn85fWk] American Medical Association [https://www.ama-assn.org/] Dr. Jessica Knurick [https://www.jessicaknurick.com/] Dr. Paul Offit [https://www.paul-offit.com/] Defend Public Health [https://www.defendpublichealth.org/] Your (or a nearby) state / city department of health and / or healthcare provider Learn more about our show [https://erohealthcommunications.com/patient-to-purpose/] and submit ideas #PatientEngagement #PatientAdvocacy #MedicalAdvocacy #Pharma #HealthcareInnovation #HealthcareDecisions #MultipleSclerosis #MS #HealthInsurance #Patients

Trust, Access & The Future of Patient Advocacy

In this episode Erica & Stefan talk to Lauren Walrath [https://www.linkedin.com/in/lauren-walrath-extlaffairs/] about the Japanese concept of Wa (和) in patient access and care. Wa focuses on group harmony over individual expression, maintaining smooth relationships, consensus-based decision-making, emphasis on social order, and mutual obligation. Learn more about our show [https://erohealthcommunications.com/patient-to-purpose/] and submit ideas #PatientEngagement #PatientAdvocacy #MedicalAdvocacy #Pharma #HealthcareInnovation #HealthcareDecisions