"FAP Is So Much More Than the Colon"

"FAP Is So Much More Than the Colon"

Jenny Jones is back, and a lot has changed. Since her last visit, she lost her mother to FAP complications, launched Life's Apolyp Foundation as a 501 (c) (3) nonprofit, and is correcting the record on something she got wrong last time: FAP is not just a colon disease. It's a whole-body condition that can show up in the eyes, skin, teeth, liver, and more, and the gaps in that understanding are delaying diagnosis and putting families at risk. This conversation covers the foundation, the research funding gap, the APC gene, and what it looks like to build a legacy out of grief.          CHAPTERS / TIMESTAMPS  00:00 Introduction to Chronic Truth Podcast 00:47 Understanding FAP and Its Gaps 09:13 The Launch of Life's Apollop Foundation 16:04 Community and Advocacy for FAP Patients 24:48 Future Goals for Life's Apollop Foundation CONNECT & RESOURCES Jenny Jones:  🌐 lysapolyp.org [https://lifesapolyp.org]    The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

Cognitive Decline, Tough Exteriors & the Breaking Point: The Real Face of Multiple Sclerosis

Mara Fowler has lived with multiple sclerosis for 26 years, diagnosed just after her 21st birthday, after being misdiagnosed with complex migraines. She's been through plasmapheresis, eight and a half months of not walking, seizures, a torn labrum, and the kind of cognitive decline that quietly dismantles the life you built. She joins Kim Nash, who is currently going through the McDonald MS diagnostic criteria herself, for a deeply personal conversation about resilience, relearning your limits, building the right care team, and why sharing your story might be the most powerful thing you can do for someone else.        CHAPTERS / TIMESTAMPS  00:00 Introduction to the Chronic Truth Podcast 01:08 Mara's Journey with MS 03:01 Understanding MS Symptoms and Triggers 06:42 The Impact of Diagnosis at a Young Age 10:05 The Importance of a Supportive Care Team 13:00 Navigating Life Changes with MS 15:48 Advocacy and Community Engagement 17:37 Words of Wisdom for Newly Diagnosed Patients CONNECT & RESOURCES 📱 Social Media: Facebook [https://www.facebook.com/mara.steiner.96] | Instagram [https://www.instagram.com/mara.fowler.ms_]   The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

HIV Long-Term Survivors Were Never Supposed to Exist

Jesus Guillen has been an HIV survivor for 41 years since 1985, when a nurse at UCLA told him he was positive and walked out. He arrived in the U.S. in 1984 with no papers, no community, and no roadmap. What he built in the decades that followed Aguilas in San Francisco, the HIV Long-Term Survivors International Network, a global speaking career, and an Emmy-winning documentary came from the same impulse: nobody should have to think they're the only one left. This episode airs on HIV Long-Term Survivors Awareness Day and during Pride Month. It is one of the most important conversations this show has had.        CHAPTERS / TIMESTAMPS  00:00 Introduction to Resilience and Awareness 02:37 Jesus Gillian's Journey: A Personal Story of Survival 12:40 Stigma and Discrimination: The Ongoing Battle 20:03 Advancements in HIV Treatment and Awareness 27:21 The Importance of Community and Connection 37:01 Building Support Networks for Long-Term Survivors 45:30 Closing Thoughts: The Need for Compassion and Understanding CONNECT & RESOURCES 📱 Social Media: Search #YourSingingAdvocate [https://www.instagram.com/yoursingingadvocate/] across platforms 📺 Documentary: Last Men Standing (Emmy Award-winning) 🌐 HIV Long-Term Survivors International Network [https://www.facebook.com/HIVLONGTERMSURVIVORS] (contact via social media)    The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

Singing Through Fire: What Joy Looks Like When You've Lost Your Health, Your Career & Your Husband

Lara Silverman was two weeks into her dream job as a federal prosecutor when a rare neurological condition turned her world literally upside down. Eight years later, she's still largely bedridden with severe chronic vertigo, a widow, and the author of Singing Through Fire — an Amazon #1 bestseller she wrote flat on her back in six months. Her story includes a love story with a man facing terminal cancer, a wedding with a chemo pump in the room, and a faith that has been tested, broken, rebuilt, and tested again. For anyone in the chronic illness community wrestling with God, suffering, and the question of why this one is for you.      CHAPTERS / TIMESTAMPS  00:00 The Journey of Pain and Purpose 10:09 Finding Joy in Grief 20:03 Surrendering to Suffering 27:37 Community and Connection in Chronic Illness CONNECT & RESOURCES 📚 Book & Audiobook: Singing Through Fire [https://www.amazon.com/Singing-Through-Fire-Finding-Surprising/dp/B0FMQZ264W] — available on Amazon 🎙️ Podcast: Singing Through Fire [https://www.youtube.com/@theSILVERMANshow] — on YouTube (The Silverman Show) 📱 Instagram: @larapalanjian [https://www.instagram.com/larapalanjian] (maiden name) 📺 YouTube: The Silverman Show [https://www.youtube.com/@theSILVERMANshow]  The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

Diabetes Burnout, Workplace Stigma & Why the Right Community Changes Everything

Chelcie Rice has had Type 1 diabetes since the late 1980s, diagnosed at 25, with no technology, no community, and a pamphlet for guidance. By 2005, he'd lost vision in one eye. Instead of retreating, he built a platform using comedy and storytelling to break the stigma and reach the people who are still navigating it alone. He joins Kim Nash to talk about diabetes burnout, the landmines inside online support groups, how workplaces fail their diabetic employees, and why humor might be the most underrated tool in chronic illness advocacy.      CHAPTERS / TIMESTAMPS  00:00 Introduction to the Chronic Truth Podcast 01:06 Chelsea's Journey with Type 1 Diabetes 04:35 Navigating Complications and Community Support 10:06 Advocacy and the Importance of Community 12:57 Understanding Diabetes in the Workplace 15:48 The Role of Community in Chronic Illness Management 21:11 Advice for Newly Diagnosed Patients 23:35 Connecting with Chelsea and Closing Thoughts CONNECT & RESOURCES  📱 @type1comedian [https://www.instagram.com/type1comedian] The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production: Podcast Mechanic [https://podcastmechanic.xyz]