The Secret Life of Sibs
Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings! If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org [ https://krabbeconnect.org]. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode. (Transcript coming soon!)
9 Episoder
Kommentarer
0Vær den første til å kommentere
Registrer deg nå og bli medlem av The Secret Life of Sibs sitt community!