Billede af showet The Starry-Eyed Podcast®

The Starry-Eyed Podcast®

Podcast af Williams Syndrome Association

engelsk

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Presented by the Williams Syndrome Association, the Starry Eyed Podcast® will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

Alle episoder

100 episoder

episode Ep 102 - Beyond Awareness Month with Bailey Stack cover

Ep 102 - Beyond Awareness Month with Bailey Stack

Today Jen and Brendan are joined by Bailey Stack, who reminds us that WS Awareness is a year-round endeavour! She shares how she found her voice and learned to trust herself when talking about her own disability and has become a mighty advocate educating families and professionals around the world using social media. Look like Brendan! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

I går - 30 min
episode Ep 101 - The Family Network with Laura Spinney cover

Ep 101 - The Family Network with Laura Spinney

We kick off a new century of podcasts with one of the newest additions to the WSA staff: Vice President of Programs Laura Spinney. Laura shares her extensive background working in disability advocacy and as a parent to her adult daughter with WS. She also gets into the details of the WSA's latest program: The Family Network. For more information on the Family Network, go to https://www.williams-syndrome.org/familynetwork [https://www.williams-syndrome.org/familynetwork] and if you're interested in applying for an Area Lead position or a State Lead position, click through to the position descriptions! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

9. juni 2026 - 35 min
episode Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal cover

Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal

1-0-0!!!! For our 100th episode, we celebrated a milestone live on the Weekend for Williams Broadcast. Jen couldn't join us this time, so Joel sat in to help Brenden lead the conversation. Together they welcomed two wonderful guests: Dr. Mo Helgren of the Frank H. Netter School of Medicine and her student Camilo Zeballos Carvajal, a fellow musician and rare disease advocate. The discussion explored how the next generation of doctors is learning to care for people with rare conditions, and how a shared love of music can open the door to that work. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

2. juni 2026 - 58 min
episode Ep 99 - Jules Delivers with Juliet Warren cover

Ep 99 - Jules Delivers with Juliet Warren

Nine-nine!! For the last show before we hit the century mark, we're joined by a guest a refreshing as a tropical breeze. Jules Warren is a Chicago transplant to Hawaii, and uses her people skills working at Depo Market (@depo_market). Joining her is Tiffany Chou, the founder and owner, who, as she says in the interview, "doesn't take no for an answer," so when she told Jules she wanted her to work at her store, there was no looking back. Learn more about the shop at depomarket.org. Please join us on the 30th & 31st on Facebook, Instagram, and on YouTube for the 2026 Weekend for Williams Broadcast-a-thon! The recording of the 100th episode will happen live that weekend. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

26. maj 2026 - 39 min
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En fantastisk app med et enormt stort udvalg af spændende podcasts. Podimo formår virkelig at lave godt indhold, der takler de lidt mere svære emner. At der så også er lydbøger oveni til en billig pris, gør at det er blevet min favorit app.
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