The Starry-Eyed Podcast®

Ep 95 - Awareness Month Prep with Brendan and Joel

13 min · 28. Apr. 2026
Episode Ep 95 - Awareness Month Prep with Brendan and Joel Cover

Beschreibung

It's a quickie episode this week as Brendan (who is literally tiptoeing through the tulips) and Joel prepare for May - which is, of course, Williams Syndrome Awareness Month. You can find resources to share with others in the WSA Awareness Month Toolkit [https://www.williams-syndrome.org/2026-awareness-month-toolkit].  We're also joined from the tulip field by Anne Lemieux to discuss her new book of fiction "See the Music, Hear the Light." Find out more and purchase your copy at seethemusichearthelight.com [https://seethemusichearthelight.com/]. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

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Alle Folgen

100 Folgen

Episode Ep 101 - The Family Network with Laura Spinney Cover

Ep 101 - The Family Network with Laura Spinney

We kick off a new century of podcasts with one of the newest additions to the WSA staff: Vice President of Programs Laura Spinney. Laura shares her extensive background working in disability advocacy and as a parent to her adult daughter with WS. She also gets into the details of the WSA's latest program: The Family Network. For more information on the Family Network, go to https://www.williams-syndrome.org/familynetwork [https://www.williams-syndrome.org/familynetwork] and if you're interested in applying for an Area Lead position or a State Lead position, click through to the position descriptions! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

Gestern35 min
Episode Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal Cover

Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal

1-0-0!!!! For our 100th episode, we celebrated a milestone live on the Weekend for Williams Broadcast. Jen couldn't join us this time, so Joel sat in to help Brenden lead the conversation. Together they welcomed two wonderful guests: Dr. Mo Helgren of the Frank H. Netter School of Medicine and her student Camilo Zeballos Carvajal, a fellow musician and rare disease advocate. The discussion explored how the next generation of doctors is learning to care for people with rare conditions, and how a shared love of music can open the door to that work. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

2. Juni 202658 min
Episode Ep 99 - Jules Delivers with Juliet Warren Cover

Ep 99 - Jules Delivers with Juliet Warren

Nine-nine!! For the last show before we hit the century mark, we're joined by a guest a refreshing as a tropical breeze. Jules Warren is a Chicago transplant to Hawaii, and uses her people skills working at Depo Market (@depo_market). Joining her is Tiffany Chou, the founder and owner, who, as she says in the interview, "doesn't take no for an answer," so when she told Jules she wanted her to work at her store, there was no looking back. Learn more about the shop at depomarket.org. Please join us on the 30th & 31st on Facebook, Instagram, and on YouTube for the 2026 Weekend for Williams Broadcast-a-thon! The recording of the 100th episode will happen live that weekend. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

26. Mai 202639 min
Episode Ep 97 - Lifting Lives with Dr. Elisabeth Dykens and Dr. Elizabeth Roof Cover

Ep 97 - Lifting Lives with Dr. Elisabeth Dykens and Dr. Elizabeth Roof

Awareness Month keeps rolling on this week with two very special guests: Dr. Elizabeth Roof and Dr. Elisabeth Dykens from Vanderbilt Kennedy Center. They are the driving force behind the Academy of Country Music Lifting Lives [https://vkc.vumc.org/vkc/services/acm_music_camp/] music camp in Nashville which has been changing the lives of adults with WS as well as some of Country Music's biggest stars for over 20 years.  They join their old friend Brendan (along with Producer Joel filling in for Jen) to discuss the relationship between WS, anxiety, and music. When the first two team up, it's often music as the panacea for splitting them up again. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

12. Mai 202637 min