The Working Class Podcast with Chris Swanson

Fighting for Families Living with Rare Diseases | Chris Swanson & Amanda Keenum

30 min · 19. maj 2026
episode Fighting for Families Living with Rare Diseases | Chris Swanson & Amanda Keenum cover

Description

In this episode, Chris sits down with Amanda Keenum to hear the story of her daughter Raelyn, who was born with a rare genetic condition called SPG4. Amanda shares the realities families face while navigating rare diseases, from medical care and therapies to insurance challenges and long-term support. Their conversation brings awareness to the struggles, resilience, and advocacy behind raising a child with special needs, while highlighting the importance of ensuring families like theirs are not overlooked.

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