From Clues to Care: Improving Recognition and Treatment of Alpha-Mannosidosis

Patient-Centered Holistic Care

9 min · 11. März 2026

Beschreibung

* Integrated Care Coordination * Consensus Recommendations for Routine Follow-UpCare in AM * Detailed Assessment Recommendations by BodySystem

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Patient-Centered Holistic Care

* Integrated Care Coordination * Consensus Recommendations for Routine Follow-UpCare in AM * Detailed Assessment Recommendations by BodySystem

11. März 20269 min

Standard of Care Treatment and Monitoring for AM

* Enzyme Replacement Therapy (Velmanase Alfa) * Pivotal Trials of Velmanase Alfa in AM * Hematopoietic Stem Cell Transplant * Consensus Recommendations for Monitoring Treatment

11. März 202617 min

Identification and Diagnosis of AM

* Phenotypic Subtypes of AMGuidelines for Genetic Testing * Diagnostic Algorithms for AM * Consensus Recommendations for Testing andBaseline Assessment

11. März 202611 min

Introduction to Alpha-Mannosidosis (AM)

* Description * Epidemiology * Case Vignette

11. März 20264 min

Patient-Centered Holistic Care

Beschreibung

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2 Monate für 1 €

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