GOALS: An ALS United Podcast

United in Care - Cassy Adams Executive Director with ALS Northwest

35 min · 9. Juni 2026
Episode United in Care - Cassy Adams Executive Director with ALS Northwest Cover

Beschreibung

Cassy Adams from  @ALSNorthwest  [https://studio.youtube.com/channel/UC6YSZLOw5DyT1d37i2Dz8pw] joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collaborate to best serve the ALS community. Learn more about ALS Northwest at www.alsnorthwest.org [http://www.alsnorthwest.org] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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Alle Folgen

68 Folgen

Episode Lessons in ALS, Stress, and Mental Health with Maria Malfi - ALS United Mid-Atlantic GOALS Podcast Cover

Lessons in ALS, Stress, and Mental Health with Maria Malfi - ALS United Mid-Atlantic GOALS Podcast

Maria Malfi lost her mother to ALS. Through her experience and her personal research, Maria has focused her attention on issues of stress and mental health and how they impact an ALS diagnosis and affect caregivers as well. In this GOALS Podcast, Maria talks about her family's experience with ALS, touring the research lab at Penn State Health Hershey Medical Center, and how to have better conversations about mental health. Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Gestern37 min
Episode Lessons in Leadership and Providing Care with Taryn Norley from ALS Arizona Cover

Lessons in Leadership and Providing Care with Taryn Norley from ALS Arizona

Taryn Norley, President and CEO of ALS Arizona, joins the ALS United Mid-Atlantic GOALS Podcast to discuss the work of serving the ALS community in Arizona and how it compares to other ALS United partners. Topics include delivering on care services, partners with clinics and researchers, serving rural communities, and inspiring events. To learn more about ALS Arizona, visit www.alsaz.org [http://www.alsaz.org] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

7. Juli 202639 min
Episode Inspiration and Hope in ALS Research - Brianna Lisi, MS joins the ALS United GOALS Podcast Cover

Inspiration and Hope in ALS Research - Brianna Lisi, MS joins the ALS United GOALS Podcast

Brianna Lisi, MS, is a PhD candidate doing her work at the Jefferson Weinberg ALS Center in Philadelphia. In this Podcast, Brianna talks about what inspired her to go into ALS research, what a typical day is like for a researcher, motor neurons, astrocytes, and what tests can prove useful for ALS science. Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

30. Juni 202628 min
Episode Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast Cover

Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast

Josi Shimkus, MA, CCC-SLP, Hackensack Meridian Health Jersey Shore University Medical Center, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her expertise and work assisting people with ALS with communication therapy and technology. Topics include swallowing issues, tracking speaking strength, coordinating with the clinic team, and the ALS United Walk. Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

23. Juni 202628 min
Episode United in Care - Cassy Adams Executive Director with ALS Northwest Cover

United in Care - Cassy Adams Executive Director with ALS Northwest

Cassy Adams from  @ALSNorthwest  [https://studio.youtube.com/channel/UC6YSZLOw5DyT1d37i2Dz8pw] joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collaborate to best serve the ALS community. Learn more about ALS Northwest at www.alsnorthwest.org [http://www.alsnorthwest.org] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

9. Juni 202635 min