RARENETIC

RARENETIC

TRAILER

1 min · 8. Apr. 2022
Episode TRAILER Cover

Beschreibung

Welcome, to RARENETIC! Get ready for us to launch on April 29th. Make sure to follow us on Instagram and Twitter, linked below! instagram.com/rareneticpod twitter.com/rareneticpod

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Episode What are Rare Diseases and What Does Being Undiagnosed Mean? Cover

What are Rare Diseases and What Does Being Undiagnosed Mean?

Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode! RESOURCE LINKS * Genetic and Rare Disease Information Center [https://rarediseases.info.nih.gov/] * Rare Disease Clinical Network [https://www.rarediseasesnetwork.org/] * National Organization for Rare Disorders [https://rarediseases.org/] * Rare Diseases International [ https://www.rarediseasesinternational.org/] * Rare Undiagnosed Network [https://rareundiagnosed.org/] * Undiagnosed Diseases Network [https://undiagnosed.hms.harvard.edu/] * Undiagnosed Diseases Network International [https://www.udninternational.org/] SOCIALS * Instagram [//instagram.com/rareneticpod] * Twitter [//twitter.com/rareneticpod]

29. Apr. 202210 min