Born With It, Diagnosed at 50: Dwayne Wilson on Pompe Disease and Why Early Testing Saves Muscle

"Hepatitis Cannot Wait" | Kenneth Kabagambe on 13 Years of Advocacy, Policy Wins & Gaps That Remain

Kenneth Kabagambe founded Uganda's National Organization for People Living with Hepatitis B after watching a friend die of a disease nobody around him had heard of, and then being diagnosed himself. In 13 years, he has secured government funding, free birth dose vaccination for every newborn in Uganda, a Triple Elimination Conference for Africa, and ongoing advocacy at the highest levels of health policy. He joins Kim Nash for a conversation about stigma that still breaks families, clinical trials that exclude the populations that need them most, funding that still hasn't arrived, and why hepatitis B cannot wait.            CHAPTERS / TIMESTAMPS  00:00 Introduction to Hepatitis Awareness 02:08 Kenneth's Journey and Advocacy 14:06 Progress in Hepatitis B Management 20:52 Challenges in Funding and Awareness 25:13 Understanding Hepatitis B Transmission 27:09 Stigma and Discrimination in Hepatitis B 31:21 Future of Hepatitis B Treatment 34:45 Connecting with the Advocacy Community CONNECT & RESOURCES Kenneth:  🌐 Website: noplhb.org [https://noplhb.org/] 💼 LinkedIn: Kenneth Kabagambe [https://www.linkedin.com/in/kenneth-kabagambe-5529498a/] / National Organization for People Living with Hepatitis B [https://www.linkedin.com/company/the-national-organisation-for-people-living-with-hepatitis-b/posts/?feedView=all] 📘 Facebook: Kenneth Kabagambe [https://www.facebook.com/KennethKabaga] / National Organization for People Living with Hepatitis B [https://www.facebook.com/noplhb.org]    The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

Born With It, Diagnosed at 50: Dwayne Wilson on Pompe Disease and Why Early Testing Saves Muscle

Dwayne Wilson was born with Pompe disease and didn't find out until he was 50 years old, when he couldn't climb a staircase, couldn't get off the toilet, and felt like someone was standing on his chest in a swimming pool. Eight years later, he's on biweekly infusion #194, rolled his Dolphin-stickered electric wheelchair to 14 Anaheim Ducks games this season, and posted a laser show video that got 4.1 million views and counting. He returns to The Chronic Truth to talk about treatment, mental health, hybrid mobility, and why getting the diagnosis is never the end, it's a new beginning.            CHAPTERS / TIMESTAMPS  00:00 Introduction to Pompeii Disease and Advocacy 09:46 Dwayne's Journey to Diagnosis 20:06 Living with Pompeii Disease 30:00 Advocacy and Spreading Awareness 39:48 Mental Health and Quality of Life CONNECT & RESOURCES Dwayne:  📱 Instagram: @SmashingPompe [https://instagram.com/smashingpompe] 📱 Facebook: Smashing Pompe / Dwayne Wilson [https://facebook.com/smashingpompe] 🐦 X (Twitter): @SmashingPompe 💼 LinkedIn: Dwayne Wilson [https://www.linkedin.com/in/dwayne-m-w-61a714b3/] (professional content and columns) 🌐 Pompe Champions Program: communityofus.com [https://communityofus.com/] (lists all 10 Pompe champions) 💪 Free wristbands: Message Dwayne directly — says "Pompe Awareness" and "Smashing Pompe"     The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

What Conventional Eye Care Gets Wrong

Dr. Edward Kondrot was a conventional eye surgeon until adult-onset asthma and the tremors caused by his medication forced him to find another way. Homeopathy cured his asthma. It also changed who he was as a doctor. Now he integrates homeopathy, microcurrent stimulation, and whole-person care into his ophthalmology practice and gives away his bestselling book for free because no book helps anyone sitting on a shelf. He joins Kim Nash for a conversation about treating the person instead of the disease, what an argument with your wife has to do with losing your sight, and why hope is the prerequisite for any cure.          CHAPTERS / TIMESTAMPS  00:00 Introduction to Chronic Truth Podcast and Guest Background 05:04 Dr. Kondrat's Health Crisis and Discovery of Homeopathy 10:06 Integrating Homeopathy into Ophthalmology Practice 14:56 The Importance of Diet and Nutrition in Health 20:14 Spiritual Aspects of Healing and Community Support CONNECT & RESOURCES Dr. Kondrot:  📚 Free Book Download: kondrotbook.org [https://kondrotbook.org] (10 Essentials to Save Your Sight) 🩺 Free Eye Record Review: freeconsult.us [https://freeconsult.us] 📰 Substack: kondrot.com [https://kondrot.com] (vision tips twice weekly + Ask Dr. Kondrot sessions twice monthly) 🙏 Prayers for Vision Group: Contact via kondrot.com [https://kondrot.com]    The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

"FAP Is So Much More Than the Colon"

Jenny Jones is back, and a lot has changed. Since her last visit, she lost her mother to FAP complications, launched Life's Apolyp Foundation as a 501 (c) (3) nonprofit, and is correcting the record on something she got wrong last time: FAP is not just a colon disease. It's a whole-body condition that can show up in the eyes, skin, teeth, liver, and more, and the gaps in that understanding are delaying diagnosis and putting families at risk. This conversation covers the foundation, the research funding gap, the APC gene, and what it looks like to build a legacy out of grief.          CHAPTERS / TIMESTAMPS  00:00 Introduction to Chronic Truth Podcast 00:47 Understanding FAP and Its Gaps 09:13 The Launch of Life's Apollop Foundation 16:04 Community and Advocacy for FAP Patients 24:48 Future Goals for Life's Apollop Foundation CONNECT & RESOURCES Jenny Jones:  🌐 lysapolyp.org [https://lifesapolyp.org]    The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]

Cognitive Decline, Tough Exteriors & the Breaking Point: The Real Face of Multiple Sclerosis

Mara Fowler has lived with multiple sclerosis for 26 years, diagnosed just after her 21st birthday, after being misdiagnosed with complex migraines. She's been through plasmapheresis, eight and a half months of not walking, seizures, a torn labrum, and the kind of cognitive decline that quietly dismantles the life you built. She joins Kim Nash, who is currently going through the McDonald MS diagnostic criteria herself, for a deeply personal conversation about resilience, relearning your limits, building the right care team, and why sharing your story might be the most powerful thing you can do for someone else.        CHAPTERS / TIMESTAMPS  00:00 Introduction to the Chronic Truth Podcast 01:08 Mara's Journey with MS 03:01 Understanding MS Symptoms and Triggers 06:42 The Impact of Diagnosis at a Young Age 10:05 The Importance of a Supportive Care Team 13:00 Navigating Life Changes with MS 15:48 Advocacy and Community Engagement 17:37 Words of Wisdom for Newly Diagnosed Patients CONNECT & RESOURCES 📱 Social Media: Facebook [https://www.facebook.com/mara.steiner.96] | Instagram [https://www.instagram.com/mara.fowler.ms_]   The Chronic Truth Podcast:   🌐 Website: chronictruthpodcast.com [https://chronictruthpodcast.com] 📱 Instagram: @ChronicTruthPodcast [https://www.instagram.com/chronictruthpodcast] 📘 TikTok: @chronictruthpodcast [https://www.tiktok.com/@chronictruthpodcast] 💬 Share Your Story: Testimonials [https://chronictruthpodcast.com/#testimonials] 📋 Community Survey: Survey [https://chronictruthpodcast.com/#survey] Production Partner: Podcast Mechanic [https://podcastmechanic.xyz]