The Health Brief

Balancing patients' privacy and health data's potential

20 min · 5. Juli 2023
Episode Balancing patients' privacy and health data's potential Cover

Beschreibung

European Health Data Space (EHDS) focuses on the primary and secondary use of data. While the primary use of data is data used by citizens and healthcare professionals at the national and EU levels the secondary data is to be used by researchers, policy makers and pharma. The Commission's proposal does not include any say for patients regarding the secondary use of data, while Parliament, which is currently dealing with the proposal [https://www.euractiv.com/section/health-consumers/news/eu-parliament-solving-riddle-of-secondary-use-of-data-in-health-data-space/], is vowing for an opt-out option. In the meantime, there is a petition [https://act.wemove.eu/campaigns/medical-records?action=sign]circling calling for the empowerment of patients regarding the secondary use of their health records. About what concerns are being seen for the patients when it comes to reuse of the health data EURACTIV's Giedre Peseckyte is talking with Jan Penfrat, the senior policy advisor at the European digital rights association.

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22 Folgen

Episode AI: at the Interface of computer science and Medicine Cover

AI: at the Interface of computer science and Medicine

From YouTube-recommended videos to facial recognition used to unlock smartphones, AI is already being used on a daily basis. The healthcare sector is not an exception as its ability to process vast amounts of medical data helps in diagnostics and medical image analysis. To better understand where AI is already used and what potential it holds, EURACTIV’s Giedrė Peseckytė is talking with Jakob Kather, a medical doctor and a Professor of Clinical artificial intelligence at the computer science and the medical faculty in Dresden. As he says, he is in a “quite unique position at the interface of computer science and medicine,” where with his team he is using artificial intelligence for medical decision-making and developing tomorrow's AI tools for medicine.

19. Juli 202332 min
Episode Balancing patients' privacy and health data's potential Cover

Balancing patients' privacy and health data's potential

European Health Data Space (EHDS) focuses on the primary and secondary use of data. While the primary use of data is data used by citizens and healthcare professionals at the national and EU levels the secondary data is to be used by researchers, policy makers and pharma. The Commission's proposal does not include any say for patients regarding the secondary use of data, while Parliament, which is currently dealing with the proposal [https://www.euractiv.com/section/health-consumers/news/eu-parliament-solving-riddle-of-secondary-use-of-data-in-health-data-space/], is vowing for an opt-out option. In the meantime, there is a petition [https://act.wemove.eu/campaigns/medical-records?action=sign]circling calling for the empowerment of patients regarding the secondary use of their health records. About what concerns are being seen for the patients when it comes to reuse of the health data EURACTIV's Giedre Peseckyte is talking with Jan Penfrat, the senior policy advisor at the European digital rights association.

5. Juli 202320 min