Albinism: Living with a rare disease while coping and thriving during COVID-19

Legally Blind Filmaker shares his secrets and inspirations - Juan Alcazar

Juan Alcazar an incredible storyteller and legally blind filmmaker shares his story, challenges, lessons learned, and how to start your filmmaking career from your bedroom.  Follow JC5 Productions on YouTube to find different types of short films from comedy sketches to dramatic shorts and even some horror films: www.youtube.com/user/JC12209  This podcast was sponsored by Sunu, inventors of the Sunu Band. A smartwatch that warns the blind & low vision whenever there is an obstacle or person nearby, keeping them safe from the waist up and preventing 90% of head injuries.

Dan Berlin reveals the secret to becoming a blind ultramarathon runner

Being diagnosed with Stargardt's disease, Dan Berlin was told he would be blind by the time he reached his 20s.  As a way of demonstrating ability, Dan started running a few miles every day and eventually built up to running the Inca trail in less than 13 hours. Through Team See Possibilities Dan empowers and helps young adults transition to college education and their professional lives demonstrating they can thrive no matter the field they choose.  Get to know more about team possibilities: http://www.teamseepossibilities.com/ [https://www.youtube.com/redirect?event=video_description&v=iVpKltdH6Mc&q=http%3A%2F%2Fwww.teamseepossibilities.com%2F&redir_token=fkzSXqhNkQCy9MsmdSrD7vk5PTl8MTU5MDA5NTA1NUAxNTkwMDA4NjU1] This podcast was sponsored by Sunu, inventors of the Sunu Band. A smartwatch that warns the blind & low vision whenever there is an obstacle or person nearby, keeping them safe from the waist up and preventing 90% of head injuries.  Learn more about the Sunu band at https://www.sunu.com/ [https://www.youtube.com/redirect?event=video_description&v=iVpKltdH6Mc&q=https%3A%2F%2Fwww.sunu.com%2F&redir_token=fkzSXqhNkQCy9MsmdSrD7vk5PTl8MTU5MDA5NTA1NUAxNTkwMDA4NjU1] and at www.getsunuband.com

Albinism: Living with a rare disease while coping and thriving during COVID-19

Today, we spoke with Carmen Camacho. Carmen is a health professional and advocate for persons with rare diseases. She is a member of the board of directors and New England area coordinator of the Hermansky-Pudlack Syndrome, HPS Network. In this special episode, we speaking about living with albinism and how a rare disease enables our unique problem-solving skills to help us thrive during our new normal with coronavirus.

Helpful resources for the blind and low vision during COVID-19 with Sassy Outwater

In this new episode we talk about:   -Challenges that the blind and visually impaired community is facing right now -How we can help nonprofits and individuals to better cope with our new reality -The importance of resilience, a positive attitude and asking for help when needed -Changes COVID-19 will bring and how to make the best out of them  Sassy is the executive director of the Massachusetts Association for the Blind and Visually Impaired (MABVI), a nationally known leader and advocate expert on assistive technology and accessibility.   This show was brought to you by Sunu. Creators of the Sunu band, a device that warns the blind and low vision whenever there is an obstacle or person nearby.  Visit www.sunu.com to learn more.

How the blind can thrive & learn more about technology during COVID-19 - Katrina Best, Cody Laplante

In this episode, with experts from the BVI community; Katrina Best and Cody Laplante we talk about:   - How COVID-19 is a great opportunity for blind students, teachers, and O&Ms to get better with technology.   - How to keep doing your orientation and mobility practice safely at home - How to go grocery shopping safely as a blind person   - Tips for sighted people when helping a blind person during COVID-19 - Schools for the blind are closed, but you can leverage technology to continue learning or teaching - How to stay informed during COVID-19 as parents of the blind and low vision.