Real Life Sh*&: How to talk to your provider (as a parent) & How to talk to parents (as a provider) so that they'll ACTUALLY LISTEN!

She Did Everything Out of Love

Losing Feda & Mu is something that I still can’t fully process. Will I get through it? Yes. Will I ever be okay with their lives being cut tragically short? Nope. But if I learned anything from Feda it’s this - 1) red lipstick makes every woman feel better and 2) life is only worth living if you do everything out of love. This will be the last episode of The Scoop. Feda and I specifically designed the format and content of this podcast to take into account both of our experiences and points of view. It’s not the same without her voice and I can’t imagine trying to find someone else to replace her. It just doesn’t work. I wanted to end this podcast by sharing the audio recording of an interview I did with Feda on May 29th.I had reached out to her to have her share her story as part of a course for Behavior Analysts for On Location, my media company that I founded with Ryan O’Donnell [https://www.facebook.com/teamonlocationllc/?__cft__[0]=AZVrvgj5FRDwxo1Nnq5rH2I9kLCTphk9kwBLe3TroEI9t0clw5F9-hMlMUDh9RR0qN_OJ3jPzFYqLtcyyetiUPvfLlb6MSJVxTFcTRr5WMdH7uyjytOo8IbbE0F3YPRSjgy0mCsLfDa0vofC_gEBgEr3&__tn__=kK-R]. We wanted to share the impact of COVID on the field of Behavior Analysis. We knew we had to include families and service recipients. Feda was totally game. She was adamant she wanted to shed light on the plight of parents who were trying to support their children with severe autism during the pandemic. We hadn’t seen each other in almost 3-months and I was craving her swearing, hugs and food. Feda was totally open, raw, hilarious and deeply inappropriate at times. So basically she was 100% herself. You can watch the full-length video, which also has lots of footage of Feda with Mu for FREE via On Locations course website (first link in the Show Notes). Thank you for supporting The Scoop. Thank you for loving Feda. Thank you for supporting me. And please, please remember to do as many things in your life out of love. Show Notes: “What About Parents” Feda & Mu Almaliti: A Quest To Bring Awareness to Parents of Children with Severe Autism https://on-location.mykajabi.com/products/what-about-parents-a-quest-to-bring-awareness-to-parents-of-children-with-severe-autism [https://on-location.mykajabi.com/products/what-about-parents-a-quest-to-bring-awareness-to-parents-of-children-with-severe-autism] NCAS post with links to ALL of the organizations Feda supported & links to all her publications https://www.ncsautism.org/blog//ways-to-honor-the-late-feda-almaliti-and-her-son-muhammed?fbclid=IwAR0AiFTsEzVjxQxgFGLPPEgjlzeSlPy_N2293owzjxpVBcBDex48V21LOos [https://www.ncsautism.org/blog//ways-to-honor-the-late-feda-almaliti-and-her-son-muhammed?fbclid=IwAR0AiFTsEzVjxQxgFGLPPEgjlzeSlPy_N2293owzjxpVBcBDex48V21LOos]

Let’s Talk About Sex

We need to normalize talking about sex and sex related issues in America. This is even more important when we're talking about sex and persons with autism or intellectual disabilities. Join us for an open conversation with Dr. Shane Spiker where we chat about common misconceptions and problems associated with sex and disability, the issue of rights (yes to porn) and the law (no to beastiality) and EVERYTHING in-between. We even talk about Lube Kegs (this is a thing)...so, let's talk about sex! Show Notes: “Helping Hands” article https://www.google.com/amp/s/shanghaiist.com/2017/05/01/hand-angels/amp/ [https://www.google.com/amp/s/shanghaiist.com/2017/05/01/hand-angels/amp/] American Association of Sex Educators https://www.aasect.org [https://www.aasect.org/] Book: Anxiety Report by Shane Spiker https://www.amazon.com/Anxiety-Report-Shane-Spiker/dp/167801754X [https://www.amazon.com/Anxiety-Report-Shane-Spiker/dp/167801754X] Book: “Cases on Teaching Sexuality to Individuals with Autism” (Whitby, 2019) https://books.google.com/books/about/Cases_on_Teaching_Sexuality_Education_to.html?id=APbVDwAAQBAJ&printsec=frontcover&source=kp_read_button [https://books.google.com/books/about/Cases_on_Teaching_Sexuality_Education_to.html?id=APbVDwAAQBAJ&printsec=frontcover&source=kp_read_button] Ethics in sexual behavior assessment and support for people with intellectual disability https://pureadmin.qub.ac.uk/ws/portalfiles/portal/33278509/ethics_in.pdf [https://pureadmin.qub.ac.uk/ws/portalfiles/portal/33278509/ethics_in.pdf] Sexual Knowledge and Victimization in Adults with Autism Spectrum Disorders https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4131130/ [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4131130/] ABAI Sexual Behavior: Research and Practices https://sbrpsig.org [https://sbrpsig.org/]

D is for Daddy...and Divorce

We figured it was about time to 1) have a dude on our show who is also a parent of a teen with autism, 2) talk about dealing with divorce & 3) determine whether or not the entire world should be on antidepressants right now. You won't want to miss this episode with our special guest, Frank Campagna aka Autism Daddy. Show Notes: Autism Daddy Facebook Page https://www.facebook.com/AutismDaddy/ The Relative Risk and Timing of Divorce in Families of Children with an Autism Spectrum Disorder https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2928572/ Daily experiences among mothers of adolescents and adults with autism spectrum disorder Smith LE, Hong J, Seltzer MM, Greenberg JS, Almeida DM, Bishop SL. Daily experiences among mothers of adolescents and adults with autism spectrum disorder. J Autism Dev Disord. 2010;40(2):167-178. doi:10.1007/s10803-009-0844-y Go Fund Me for Linden Cameron: https://www.gofundme.com/f/linden039s-medical-bills

Ethics & Cultural Humility - It’s More Than Taking Your Damn Shoes Off

On this episode of The Scoop Feda & Sarah chat with one of their faves, Dr. Amanda Kelly, PhD, BCBA, about Ethics, Cultural Humility, the concept of consent/assent and how Amanda can improve her Tinder profile. Really. We cover ALL of those topics. And manage to work in a little Kendrick Lamar, too. Show Notes: Dr. Amanda Kelly’s website https://behaviorbabe.com [https://behaviorbabe.com/] Dr. Greg Hanley’s website https://link.springer.com/article/10.1007/s40617-019-00343-8 [https://link.springer.com/article/10.1007/s40617-019-00343-8] Cultural Humility article by Dr. Patricia Wright https://practicalfunctionalassessment.com [https://practicalfunctionalassessment.com/] CalABA Recovery Campaign https://app.mobilecause.com/vf/CalAba [https://app.mobilecause.com/vf/CalAba] Pissed Off Parent of the Week Google Form https://forms.gle/odHja1NJ2VQH9ZR58 [https://forms.gle/odHja1NJ2VQH9ZR58]

Real Life Sh*&: How to talk to your provider (as a parent) & How to talk to parents (as a provider) so that they'll ACTUALLY LISTEN!

Let’s be real. Sometimes it’s really challenging for parents and providers to work together. We can all do better, so we’re going to talk about some strategies to help providers and parents communicate with each other better. And we’re going to talk about Megan Thee Stallion, too. Because she is our current hip hop fave. Show Notes: 1) Who won’t parents just do what I ask? https://dddc.rutgers.edu/pdf/allen+warczak-ti.pdf [https://dddc.rutgers.edu/pdf/allen+warczak-ti.pdf] 2) Compassionate Care https://www.alpinelearninggroup.org/images/newsletter/upload/pdf/1541693571-Taylor-LeBlanc-Nosik-in-press.pdf [https://www.alpinelearninggroup.org/images/newsletter/upload/pdf/1541693571-Taylor-LeBlanc-Nosik-in-press.pdf] 3) REDUCE RESPONSE EFFORT https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1279864/pdf/jaba00006-0198.pdf [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1279864/pdf/jaba00006-0198.pdf] 4) Take Care of YOURSELF if you want to be a good practitioner, or human being https://link.springer.com/article/10.1007/s40617-020-00442-x [https://link.springer.com/article/10.1007/s40617-020-00442-x]