Not An Island Podcast

Ep 18. 20% Chance of Survival | Marc & Ima Carnelus' Miraculous Journey

Send us a text [https://www.buzzsprout.com/twilio/text_messages/2078521/open_sms] 👇  LINKS BELOW!! 👇 Have you ever wondered how love can withstand the test of time and adversity? Join us as we share the inspiring journey of Marcus and Ima Carnelis, a couple whose story embodies faith, resilience, and the unique challenges that come with parenting a child with autism. From their initial friendship in 2006 through church connections and social media platforms to their eventual marriage in 2013, Marcus and Ima's relationship is a testament to the power of patience and shared values. Witness how their bond grew stronger through life's trials, leading them to embrace the unexpected adventure of parenthood. Experience the emotional highs and lows as Marcus and Ima recount the birth of their son Jackson, who entered the world prematurely at just 22 weeks. Their unwavering faith and determination to give their son a fighting chance shine brightly in their narrative, offering hope to parents facing similar challenges. The episode also explores the complexities of Jackson's autism diagnosis during the pandemic, highlighting the misconceptions and support systems that have played a pivotal role in their journey. Through personal anecdotes and heartfelt reflections, Marcus and Ima provide a beacon of encouragement for families navigating the labyrinth of special needs parenting. Marcus and Ima also open up about their family life, illustrating the delicate balance of raising a child with special needs while nurturing strong sibling bonds. Their candid discussion on the dynamics between Jackson and his younger sister Cameron sheds light on the importance of individual attention and celebrating each child's uniqueness. Furthermore, the episode touches on the profound impact of parenthood on personal growth and spiritual connection, showcasing how vulnerability and mutual support can fortify relationships. As a special treat, we introduce Ima's book, "Saving my Son: 119 Days of Miracles Behind the NICU Doors," along with their entrepreneurial ventures, offering both inspiration and practical insights into their remarkable journey. ‼️ GO SUPPORT MARC & IMA!! 👇 👇 🛒 10% OFF Brand Ave Clothing (Marc’s business):  https://brandaveclothing.com [https://brandaveclothing.com] 🛒 Halos & Miracles (Ima’s business): https://halosandmiracles.com [https://halosandmiracles.com] 📚 Saving My Son: 119 Days Of Small Miracles Behind The NICU: https://www.amazon.com/Saving-My-Son-Miracles-Behind/dp/1737834545/ref=sr_1_1?crid=1ZLWA24EI5CIN&dib=eyJ2IjoiMSJ9.YOzwgpbTZudAPa7umotwSUwC5zGHXr2lN4jGO56GoZjGjHj071QN20LucGBJIEps.HHUdlFK8CsMRyEVeqltLO0jSEGN0aR1AcX0FMGDI4s4&dib_tag=se&keywords=Ima+Carnelus&qid=1734660704&sprefix=ima+carnelus%2Caps%2C174&sr=8-1 [https://www.amazon.com/Saving-My-Son-Miracles-Behind/dp/1737834545/ref=sr_1_1?crid=1ZLWA24EI5CIN&dib=eyJ2IjoiMSJ9.YOzwgpbTZudAPa7umotwSUwC5zGHXr2lN4jGO56GoZjGjHj071QN20LucGBJIEps.HHUdlFK8CsMRyEVeqltLO0jSEGN0aR1AcX0FMGDI4s4&dib_tag=se&keywords=Ima+Carnelus&qid=1734660704&sprefix=ima+carnelus%2Caps%2C174&sr=8-1] Instagram Links:  @lovemarcb  @imacarnelus @notanislandpodcast Support the show [https://www.patreon.com/NotAnIslandPodcast] Be sure to FOLLOW, SHARE, RATE and SUBSCRIBE! Video Content: https://youtube.com/@notanislandpodcast [https://youtube.com/@notanislandpodcast?si=KCT7OSkJrM5Mnbn0] Support our podcast: https://www.patreon.com/NotAnIslandPodcast [https://www.patreon.com/NotAnIslandPodcast] Contact us at notanislandpodcast@gmail.com

Ep 17. Empowering Autism Awareness Through Running | Tyler Run For Autism | Leigh Ann Cook

Send us a text [https://www.buzzsprout.com/twilio/text_messages/2078521/open_sms] Leanne Cook, a passionate speech-language pathologist and clinical director at Busy Bodies Pediatrics, joins us to share her inspiring journey with the Tyler Run for Autism. Discover the heartwarming story behind this remarkable nonprofit, founded 14 years ago by three determined mothers seeking local ABA services for their children in Tyler, Texas. Leanne reveals how this volunteer-driven initiative has grown, turning a small community run into a significant event that directly supports families across East Texas with essential therapies and treatments. Listen as we explore how professional connections in children's services have blossomed into genuine friendships and advocacy partnerships. Through Leanne's insights, we reflect on the power of community support in creating a nurturing environment for families with children on the autism spectrum. Experience the vibrant atmosphere of the Tyler Run for Autism, where serious runners and supportive families unite to celebrate inclusivity with engaging activities and personal stories that underscore the importance of standing up for children's needs. We also turn our attention to the broader impact of community involvement, discussing Tyler's emergence as a hub for neurodivergent support and the critical need for resources for autistic individuals transitioning into adulthood. With initiatives like Code Ninjas and partnerships with adult day programs like Achieving Dreams, the community is making strides toward inclusivity and ongoing support. Tune in to learn how you can be part of this movement, ensuring families never feel alone in their journey. Support the show [https://www.patreon.com/NotAnIslandPodcast] Be sure to FOLLOW, SHARE, RATE and SUBSCRIBE! Video Content: https://youtube.com/@notanislandpodcast [https://youtube.com/@notanislandpodcast?si=KCT7OSkJrM5Mnbn0] Support our podcast: https://www.patreon.com/NotAnIslandPodcast [https://www.patreon.com/NotAnIslandPodcast] Contact us at notanislandpodcast@gmail.com

Ep 16. Interview with Autism On The Seas | Amanda Storer

Send us a text [https://www.buzzsprout.com/twilio/text_messages/2078521/open_sms] Use PROMO CODE AOTS-NAI-1124 for a 50% DISCOUNT on your next assisted cruise service fee!!! (Only good for 14 days from the release of this episode) 🔗 Link Below👇👇 https://autismontheseas.com/book-cruise/overview-staff-assisted-cruises/schedule Planning a vacation as a family with special needs can feel overwhelming—but it doesn’t have to be. In this video, we dive into the incredible work of Autism on the Seas, an organization that creates inclusive cruise experiences tailored to families with autism and developmental disabilities. Amanda Storer, a group leader and advocate, shares her perspective on how Autism on the Seas combines structured support with fun to create a vacation everyone can enjoy. From specialized volunteers to tailored services like expedited boarding, custom dining plans, and child care, the program ensures families feel supported every step of the way. This episode also highlights the team of volunteers—educators, therapists, and other professionals—who help families enjoy meaningful vacations while providing much-needed respite for parents. We’ll hear stories of connections formed, challenges overcome, and what makes these trips so transformative for families!! Support the show [https://www.patreon.com/NotAnIslandPodcast] Be sure to FOLLOW, SHARE, RATE and SUBSCRIBE! Video Content: https://youtube.com/@notanislandpodcast [https://youtube.com/@notanislandpodcast?si=KCT7OSkJrM5Mnbn0] Support our podcast: https://www.patreon.com/NotAnIslandPodcast [https://www.patreon.com/NotAnIslandPodcast] Contact us at notanislandpodcast@gmail.com

Ep 15. Autism and Special Interests

Send us a text [https://www.buzzsprout.com/twilio/text_messages/2078521/open_sms] Ever wondered how a child's unique interests could shape their personal and educational growth? Join us as we share the heartwarming and often hilarious journey of our son Ezra and his various obsessions, from eggs and pressure cookers to "The Very Hungry Caterpillar." Through relatable stories and memorable moments, we'll take you inside Ezra's world, where his fixations have led us on unexpected adventures—like the quest for a toy pressure cooker that actually produces steam. You’ll laugh, you might cry, and you’ll definitely find yourself reflecting on your own experiences as a parent, especially if you have a child on the spectrum. In this heartfelt episode of Not an Island, discover how Ezra's unique passions have been a catalyst for his learning and development. Hear about his love for musical doorbells and Beethoven's Fifth Symphony, and how these interests spurred him to learn piano by ear despite motor skill challenges. We also explore how his fascination with ambulances and dinosaurs has bolstered his reading and writing skills, and discuss his evolving relationship with animals. Whether you're a parent, teacher, or just curious about the power of special interests, this episode offers a touching and insightful glimpse into leveraging a child's passions for their growth. Support the show [https://www.patreon.com/NotAnIslandPodcast] Be sure to FOLLOW, SHARE, RATE and SUBSCRIBE! Video Content: https://youtube.com/@notanislandpodcast [https://youtube.com/@notanislandpodcast?si=KCT7OSkJrM5Mnbn0] Support our podcast: https://www.patreon.com/NotAnIslandPodcast [https://www.patreon.com/NotAnIslandPodcast] Contact us at notanislandpodcast@gmail.com

Ep 14. Understanding Stimming | Breaking It Down

Send us a text [https://www.buzzsprout.com/twilio/text_messages/2078521/open_sms] Join us on this episode of the Not an Island podcast where we unpack the intricate world of stimming behaviors, shedding light on why these actions are essential for individuals with autism. In this episode, we share the vital role stimming plays in self-regulation and emotional well-being, and why it’s crucial to approach these behaviors with understanding and acceptance. Navigating stimming in public spaces comes with its own set of challenges. We discuss the importance of creating environments that accommodate these needs, such as quiet rooms in workplaces, and delve into the nuances of ABA therapy. How do autistic individuals balance their need for self-stimulation with societal expectations? We tackle these critical questions, exploring the fine line between necessary self-regulation and societal integration. This thoughtful conversation aims to foster greater empathy and inclusivity within our communities. We offer practical strategies to support those with autism in managing their stimming behaviors positively. From sensory tools at home to public accommodations like sensory gyms, we provide actionable advice to help integrate these essential practices into everyday life. Highlighting the long-term benefits of stimming for focus and learning, we share inspiring examples, including notable figures, to illustrate how these behaviors continue into adulthood. Tune in for a compassionate and insightful discussion on stimming, and learn how to give grace and understanding to those navigating the complexities of autism. Support the show [https://www.patreon.com/NotAnIslandPodcast] Be sure to FOLLOW, SHARE, RATE and SUBSCRIBE! Video Content: https://youtube.com/@notanislandpodcast [https://youtube.com/@notanislandpodcast?si=KCT7OSkJrM5Mnbn0] Support our podcast: https://www.patreon.com/NotAnIslandPodcast [https://www.patreon.com/NotAnIslandPodcast] Contact us at notanislandpodcast@gmail.com