Rainbow Group - Live Well with Sight Loss

Charles Bonnet Syndrome: Busting Myths and Understanding Visual Hallucinations

In this episode, we are joined by Dr Jasleen Jolly, who talks about Charles Bonnet Syndrome. Charles Bonnet Syndrome (CBS) is a condition where people with sight loss experience visual hallucinations.  In this talk, Dr Jasleen Jolly talks about the latest research into CBS and busts some CBS myths before answering listeners' questions.  Dr Jolly is an Associate Professor in Multidisciplinary Vision research at Jolly Vision Science LTD, based in the UK. During the talk, Dr Jolly mentions several resources and a questionnaire-based study into CBS.  A link to all these resources are below. * Esme's Umbrella - https://www.charlesbonnetsyndrome.uk/ * Charles Bonnet Study - https://tinyurl.com/sight-impairment-study * Aspectum | A Short Documentary - https://www.youtube.com/watch?v=s6CdM6XwX2I

How Does the Macular Society Support People with AMD in the UK?

In this episode of the Live Well with Sight Loss podcast, Colin Daniels from the Macular Society talks about the support and services for individuals dealing with Macular disease, the primary cause of sight loss in the UK. Colin talks about the prevalence of age-related macular degeneration (AMD) and other conditions affecting central vision, emphasising the Society's commitment to emotional support and peer connections. Colin shares insights on their research initiatives aimed at understanding and treating macular diseases, as well as the establishment of a lived experience advisory panel to ensure that the voices of those affected shape the services provided. You can gain support from the Macular Society by calling their helpline on 0300 30 30 111 or visiting their website at www.macularsociety.org

Navigating Life with Sight Loss to Achieve World Champion Status - Lucy Hodges MBE,

This episode features Lucy Hodges, MBE, a world champion blind sailor and advocate for disability sports. Lucy shares her journey from being registered blind at a young age to becoming a leading figure in sailing. She emphasizes the crucial role of support from family and community, highlighting how this shaped her resilience and passion for sports. Lucy recounts her introduction to sailing, the power of teamwork, and the transformative impact of competition on personal growth. She discusses the importance of accessibility in sports, urging listeners to seek opportunities and embrace their challenges. Ultimately, Lucy's message inspires hope and empowerment, encouraging everyone to pursue their dreams despite obstacles.