Let's Talk MS

Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these conditions are and the vital role that community plays in the journey. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests:  * Souad Mazari, patient advocate and founder of NGO Rare Mais Ensemble in France. * Aida Fuentes, journalist, teacher, and the first person with NMOSD to join EMSP’s Young People’s Network (YPN). Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon.   Stay tuned and thank you for being part of our community!

Welcome to Let’s Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the stigma and discrimination faced by people with multiple sclerosis and related conditions, as well as the misjudgement of symptoms when they are both visible and invisible. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Elizabeth Cunningham, a health communications consultant and Senior Communications Manager at the European Federation of Neurological Associations (EFNA). Emma Rogan, a brain health campaigner who has worked at EMSP for over a decade. She has spent her career addressing employment issues, job retention and returning to work for people diagnosed with MS and/or living with a disability.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we discuss the emotional impact of an MS diagnosis on young people. Our guests share personal experiences, tips on asking for help, the importance of small daily victories and support, and much more. Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Yolanda Higueras, a PhD neuropsychologist with over 20 years of experience who has collaborated with EMSP on several occasions, including the previous edition of the Young People’s Festival. Janneke Knol is a member of the Young People’s Network (YPN) from the Netherlands, where she also coordinates the Youth Group within the national MS society.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode we'll talk about family planning, pregnancy and what comes after when you have the baby, learning the importance of expressing your self and don’t be afraid to talk and ask your questions to healthcare specialists.   Alongside hosts Elisabeth Kasilingam and Anna Revilla, we are excited to introduce our guests: Vicki Mathews, a nurse from the UK who has dedicated her career to the care of MS, as well as two members of the Young People’s Network: Iris Magnúsdóttir from Iceland, who has recently become a mom, and Nik Miskovic from Slovenia, a father of two.   Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram [https://www.instagram.com/eumsplatform/] and Twitter [https://twitter.com/eumsplatform] @eumsplatform for more about MS.   If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp].   Stay tuned and thank you for being part of our community!

Welcome to "Let’s Talk MS," proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode we'll explore the power of community and why people with MS need each other to foster a sense of resilience, advocate for change and create a sense of belonging. Alongside host Simina Peterfi, we introduce our guests Tania Pilz: a youth advocate, member of the EMSP’s Young People’s Network, content creator and the founder of the first International Multiple Sclerosis Community in Austria. She will be joined by Amy Thompson, founder & CEO of MS Together, winner of National Diveristy Award, freelance content creator and disability advocate.  Follow the project on Instagram and Twitter @eumsyouth for more enriching discussions. Follow the European Multiple Sclerosis Platform on Instagram and Twitter @eumsplatform for more about MS. If you enjoy our podcast and want to support our work, you can do so on Patreon [https://www.patreon.com/emsp]. Stay tuned and thank you for being part of our community!