Women's Role in Society in collaboration with Maria Formosa - ALS Malta
Maria Formosa, born on the 1st October 1987, raised in Dingli with my parents and older sister.
For the past 7 years, since the first day it was founded, I have been part in building a foundation for motor neuron disease patients by the name of ALS Malta. My husband who is the founder of ALS Malta and an ALS patient himself has come with the idea to help other people on the island affected by this disease, together with a lot of awareness, campaigning and fundraising activities, we have built a home where patients can live and have the necessary care. The first home welcomes 13 residents and has been open for the past 5 years. Throughout these last years the need has unfortunately continued rising and we have therefore continued campaigning and fundraising to build another home. In the coming months the newer and bigger home will be open in which 30 other patients can reside and find adequate care together with other services which offer quality of living.
Currently I take care of my husband needs as his permanent care giver along with others who can fill my time when I am absent. I also campaign, organise events, deliver the adequate equipment to patients, manage accounting and secretarial daily jobs and HR. Being a foundation we have started off as my husband and I covering all roles needed to run the foundation, whilst in the past year we have passed on certain roles to other employees who joined us on board to be able to run smoothly our foundation and the various tasks it entails.
My overall goals are to offer the most adequate quality of life to our patients as well as their relatives, by our full respect and full understanding as we are also going through this journey first-hand. Our aim is to help every person that asks for our help and find solutions to offer them quality of life, all necessary equipment, as well as all the information needed to face this debilitating disease in the most serene way.
My biggest accomplishment has obviously been in delivering these services to our patients and gaining the respect and support of people from all around Malta who has come together and raised enough funds to ultimately open these two homes. In terms of personal accomplishments, I strongly believe that I have learnt a lot on how to be disciplined and
focused in order to arrive to accomplish goals, and also that love, respect and sacrifice can push all boundaries in terms of being there for one another in all circumstances.
On a personal note, last year I have achieved my masters degree in Management, something I have always put aside and almost feared but with dedication I have managed to achieve. In my free time I enjoy the countryside, being able to feel free and close to nature together with my family, grandma, nephews and nieces. I also enjoy a lot training sports as it gives me the energy and positive attitude to face my days.