Dystrophy Diaries

Episode 40: Career, Confidence & SMA

Welcome to episode 40 (I can’t quite believe it!) I’m sorry I’ve been a bit MIA lately, I’ve had a few personal things to manage - but I’m back now and can’t wait to get back into the swing of filming 🤍 First up, is this episode featuring Ross Hovey! You may know Ross from LinkedIn as he is a powerful voice in the world of workplace inclusion and disabled advocacy. Ross has Spinal Muscular Atrophy and discusses what has inspired his career and how he balances disability admin and a full time job! If you enjoy this episode, please like and subscribe and maybe even have a little natter in the comments with me 🥰! #accessibility #awareness #disability #disabilitypodcast #musculardystrophy #podcast #chronicillness #cardiomyopathy #SMA #spinalmuscularatrophy #workplacewellness #linkedin #disabledadvocate

Episode 39: Cardio Queens ft Hannah Keime of HeartCharged

What an episode to share! Meet Hannah, you may know her from her social media page ‪@heartcharged‬ that she created with her sister Bethany! Hannah and Bethany both have cardiomyopathy, with Hannah having suffered a cardiac arrest at age 17. They created HeartCharged, a nonprofit that helps to advocate and support for the cardiomyopathy community! I had such a lovely chat with Hannah and felt so grateful to connect with someone so passionate and someone who I could relate to. I hope you learn more about life with cardiomyopathy from this episode and enjoy hearing more about Hannah’s journey! #disability #disabilitypodcast #musculardystrophy #podcast #cardiomyopathy #accessibility #awareness #chronicillness #heart #cardiology #cardiacwellness #cardiac #medicaleducation #medical

Episode 38: The AuDHD hangout ft Alex Markovits

Over the summer, Alex joined me on my podcast to chat about his neurodivergent journey and what advice he would give to people about how best to support people like himself!

Episode 37 - Welcome Emma Partlow

Welcome Emma Partlow - disability advocate and a powerhouse in the world of disabled travel!

Episode 36: LGMD awareness day 2025

This is a special episode to chat about LGMD awareness day and also muscular dystrophy awareness month. If you enjoy this episode - please like and subscribe xx