enableme podcast

Young Stroke 12: Understanding fatigue

In this episode, David Flood shares his journey of understanding and managing fatigue after stroke. Dave made himself the subject of his Master of Counselling research, exploring his own experience with post-stroke fatigue and how he learned to manage it. He’s now a qualified counsellor who supports other young adult survivors of stroke. Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/understanding-fatigue Find more about managing fatigue, and other Young Stroke stories, tips and resources at https://young.strokefoundation.org.au/life/fatigue

Childhood Stroke 05: Invisible Disability

Around 50% of survivors of childhood stroke live with disability, and while some can be seen, children are frequently left with invisible or hidden disabilities. That is, conditions that significantly affect their lives, but aren't always visible to the outside world. Invisible disabilities can include fatigue, cognitive, or thinking difficulties, emotional difficulties, and other neurological issues that can continue long after the stroke occurs. In this episode of the Childhood Stroke Podcast, we speak to a survivor of childhood stroke and a neuropsychologist to explore the invisible challenges children face after stroke and support systems available to help them navigate their journey. Guests: • Tala Olins-Miller, a survivor of childhood stroke, physiotherapist and member of Stroke Foundation's Lived Experience Advisory Group. • Professor Vicki Anderson, paediatric neuropsychologist with over 25 years' experience working to improve the lives of children with brain injury, including stroke.

Childhood Stroke 04: Access and inclusion in sports

When a child has a stroke in later childhood or adolescence, they may have been involved in a sport that they loved before their stroke. The impact of stroke or social perceptions can create barriers for young people returning to sport or participating. In this episode of the Childhood Stroke Podcast series, we speak to a survivor of childhood stroke and two professionals about returning to sport after a stroke and how to overcome some of the barriers young people and their families may face. The episode also covers the Para classification process. Guests: • Tommy Quick, a survivor of childhood stroke, sports fanatic, passionate advocate and member of Stroke Foundation's Lived Experience Advisory Group. • Scott Nicholas, Pathways Lead at Paralympics Australia. Identifying and progressing para-athletes along the performance pathway. • Nathan Zuzic, a physiotherapist at the Victorian Paediatric Rehabilitation Service (VPRS), coordinating the accessible sport and recreation program.

Childhood Stroke 03: Finding sports that spark joy

Positive sports experiences at an early age have important health and social benefits. Families of survivors of childhood stroke often report being unable to find inclusive activities and sporting organisations in their communities. In this episode of the Childhood Stroke Podcast series, we speak to a parent and two professionals working to engage young children in sports after childhood stroke. Guests: • Tony Peacock, a parent to a child who had a stroke and member of Stroke Foundation's Lived Experience Advisory Group. • Louise Daniels, a Senior Physiotherapist who is passionate about supporting children with a disability to participate in sporting activities. • Dr Olivia Lee, a paediatric rehabilitation consultant who supports families and children to become involved in sports after childhood stroke.

Young Stroke Special: Smashing it after stroke S2E6 – Speech pathology & inclusive communication

Paul Burns is a young stroke survivor and host of Smashing it After Stroke. Paul is back for a second season, this time talking to health professionals and industry leaders. Paul and his guests dive into current thinking on stroke recovery within their respective fields, what’s out there for those with invisible injuries and as usual, he picks up some tips and tricks along the way. In this episode, Paul talks to to speech pathologist Emma Power. Emma is a clinician, researcher and Associate Professor at the University of Technology Sydney. Emma and Paul talk about: - What speech pathology is. - Different communication and swallowing impairments. - The value of communication partner training and where to get it. - Practical tips to support people with different communication needs. - Why communication accessibility and inclusivity helps everyone in the community. Download an aphasia-friendly list of resources mentioned in this podcast: https://enableme.org.au/media/q0gbvof2/radio-podcast-stroke-foundation-support-groups.pdf Read the transcript at https://enableme.org.au/community/podcasts/young-stroke-podcast-series/speech-pathology-inclusive-communication-smashing-it-after-stroke Find more Young Stroke stories, tips and resources at https://young.strokefoundation.org.au