POGZcast

Podcast by White Sutton Syndrome Foundation

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Lisää POGZcast

The POGZcast is a podcast for individuals and families affected by White Sutton syndrome. We’re Josh and Amanda Couch, and we’re parents, advocates, and part of the team behind the White Sutton Syndrome Foundation. The POGZcast exists because individuals with White-Sutton syndrome exist—and their stories matter. In each episode we share real conversations with parents, doctors, researchers, and advocates working to better understand White Sutton syndrome and support the families living it every day. Whether you’re newly diagnosed or years into this journey, you’re not alone—and we’re glad you’re here!

Kaikki jaksot

2 jaksot

Meet the Doctors

Episode 2 of the POGZcast! In this episode, Josh and Mandy talk to doctors Jansen White and V. Reid Sutton. These doctors were the force behind one of the earliest papers written on POGZ-related disorders in 2016, and are the namesakes of White-Sutton syndrome. Contact Us: https://whitesutton.org/contact/ [https://whitesutton.org/contact/] Research Papers: https://whitesutton.org/research/ [https://whitesutton.org/research/] Jansen White's original paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4702300/ [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4702300/]

6. helmi 2026 - 36 min

Why POGZcast Exists

The inaugural episode of the POGZcast. In this episode, Josh and Mandy introduce themselves, talk about what White-Sutton syndrome is, talk foundation origins and share a little information about the new research fundraising effort. Research page: https://whitesutton.org/2026-research/ [https://whitesutton.org/2026-research/] CoRDS registry: https://whitesutton.org/research/registry/ [https://whitesutton.org/research/registry/]

2. tammi 2026 - 26 min

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