Raising with the village
Anita: Pregnancy Loss, a Lung Defect, and the First Year Nobody Prepares You For Please note: this episode contains a discussion about pregnancy loss. Please take care of yourself as you listen. Anita first joined us in episode seven, where she shared her birth experiences with an elective and an emergency C-section — and mentioned, almost in passing, that her daughter had been born with a lung defect. Today, she comes back to tell us the rest of the story. Before she does, Anita opens up about something she hadn't shared before — the loss of a pregnancy in her late first trimester. She speaks about it with honesty and tenderness, and with the kind of quiet courage that I know will resonate with so many of you. And then she takes us into her daughter's first year and a half of life. Her daughter was born with CPAM — Congenital Pulmonary Airway Malformation — a rare lung condition that was picked up during pregnancy. What followed was a journey of scans, hospital appointments, consultants, and waiting. The kind of waiting that sits with you every single day. Until the surgery. This episode is for every parent who has started their parenting journey on a hospital ward. Every parent who has learned a medical language they never wanted to know. And every parent who has loved their child through something terrifying, and found a strength they didn't know they had. In this episode we talk about: * Experiencing pregnancy loss in the late first trimester * Receiving a CPAM diagnosis during pregnancy * What CPAM is and what it means for your baby * The follow-up appointments, scans, and hospital visits in the first year * Preparing for and navigating your baby's surgery * The emotional load of parenting a baby with a medical condition * Finding community and support when your parenting journey looks different What is CPAM? CPAM (Congenital Pulmonary Airway Malformation) is a rare congenital lung condition where abnormal tissue develops in the lung during pregnancy. It varies in severity — some babies require surgery, others are monitored over time. If your baby has been diagnosed with CPAM, know that you are not alone. Resources & Support CPAM Community & Support Groups * Parents of CPAM — Facebook group recommended by Anita, a community of parents navigating a CPAM diagnosis together * CPAM Support Group UK — search on Facebook for UK-based parent communities around CPAM and congenital lung conditions * Great Ormond Street Hospital (GOSH) — gosh.nhs.uk — offers information and guidance on congenital lung conditions and treatment pathways * British Lung Foundation / Asthma + Lung UK — asthmaandlung.org.uk — resources on lung conditions in children * Contact (for families of disabled children) — contact.org.uk — provides support and advice for families of children with any medical condition or disability For Pregnancy Loss Support * Tommy's — tommys.org — leading UK charity supporting parents through pregnancy loss, with information, helplines, and community * The Miscarriage Association — miscarriageassociation.org.uk — support and information for anyone affected by pregnancy loss * Sands — sands.org.uk — supports anyone affected by the death of a baby For Finding Your Village * Peanut App — peanut-app.io — an app designed to help mums connect with other mums nearby. Anita uses it and loves it! Available in the UK, US, Canada, and Australia among others — worth checking availability in your country. If this episode resonated with you — whether you've been through pregnancy loss, you're navigating a diagnosis, or you've spent time on a hospital ward with your little one — please share it with someone who might need to hear it. And if you'd like to share your own story on the podcast, get in touch. As always, thank you for being part of this village. 💛 💛 Raising with the Village This podcast is about real parents sharing real stories — because no one should feel alone in parenthood. New episodes every Thursday! 🌐 Website: https://raisingwith.co.uk/ [https://raisingwith.co.uk/] 📸 Instagram: @raisingwiththevillage [https://www.instagram.com/raisingwiththevillage] 🎧 Listen on Spotify, Apple Podcasts, Google Podcasts, and all major platforms. If you’d like to share your own story — about birth, parenting, or family life — get in touch via the website or Instagram DMs.
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