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The Starry-Eyed Podcast®

Podcast de Williams Syndrome Association

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Historias personales y conversaciones

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Presented by the Williams Syndrome Association, the Starry Eyed Podcast® will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

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100 episodios

episode Ep 102 - Beyond Awareness Month with Bailey Stack artwork

Ep 102 - Beyond Awareness Month with Bailey Stack

Today Jen and Brendan are joined by Bailey Stack, who reminds us that WS Awareness is a year-round endeavour! She shares how she found her voice and learned to trust herself when talking about her own disability and has become a mighty advocate educating families and professionals around the world using social media. Look like Brendan! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

Ayer - 30 min
episode Ep 101 - The Family Network with Laura Spinney artwork

Ep 101 - The Family Network with Laura Spinney

We kick off a new century of podcasts with one of the newest additions to the WSA staff: Vice President of Programs Laura Spinney. Laura shares her extensive background working in disability advocacy and as a parent to her adult daughter with WS. She also gets into the details of the WSA's latest program: The Family Network. For more information on the Family Network, go to https://www.williams-syndrome.org/familynetwork [https://www.williams-syndrome.org/familynetwork] and if you're interested in applying for an Area Lead position or a State Lead position, click through to the position descriptions! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

9 de jun de 2026 - 35 min
episode Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal artwork

Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal

1-0-0!!!! For our 100th episode, we celebrated a milestone live on the Weekend for Williams Broadcast. Jen couldn't join us this time, so Joel sat in to help Brenden lead the conversation. Together they welcomed two wonderful guests: Dr. Mo Helgren of the Frank H. Netter School of Medicine and her student Camilo Zeballos Carvajal, a fellow musician and rare disease advocate. The discussion explored how the next generation of doctors is learning to care for people with rare conditions, and how a shared love of music can open the door to that work. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

2 de jun de 2026 - 58 min
episode Ep 99 - Jules Delivers with Juliet Warren artwork

Ep 99 - Jules Delivers with Juliet Warren

Nine-nine!! For the last show before we hit the century mark, we're joined by a guest a refreshing as a tropical breeze. Jules Warren is a Chicago transplant to Hawaii, and uses her people skills working at Depo Market (@depo_market). Joining her is Tiffany Chou, the founder and owner, who, as she says in the interview, "doesn't take no for an answer," so when she told Jules she wanted her to work at her store, there was no looking back. Learn more about the shop at depomarket.org. Please join us on the 30th & 31st on Facebook, Instagram, and on YouTube for the 2026 Weekend for Williams Broadcast-a-thon! The recording of the 100th episode will happen live that weekend. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

26 de may de 2026 - 39 min
Muy buenos Podcasts , entretenido y con historias educativas y divertidas depende de lo que cada uno busque. Yo lo suelo usar en el trabajo ya que estoy muchas horas y necesito cancelar el ruido de al rededor , Auriculares y a disfrutar ..!!
Muy buenos Podcasts , entretenido y con historias educativas y divertidas depende de lo que cada uno busque. Yo lo suelo usar en el trabajo ya que estoy muchas horas y necesito cancelar el ruido de al rededor , Auriculares y a disfrutar ..!!
Fantástica aplicación. Yo solo uso los podcast. Por un precio módico los tienes variados y cada vez más.
Me encanta la app, concentra los mejores podcast y bueno ya era ora de pagarles a todos estos creadores de contenido

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