Episode 131 - With Katie Thomson

Episode 131 - With Katie Thomson

In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk. After her son was born, Katie had an unfortunate time with misleading care, which led to confusion and increased anxiety. Later in the episode we talk about how having a community and support around can really help.

Episode 130 - With Andrea Guse

A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public places to give him the most 'normal' life possible. Follow Andrea - @andrearguse [https://www.instagram.com/andrearguse/#]

Episode 129 - With Jodie Mulrainey

Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts of enterocolitis and stoma issues. Later on we talk about how Ollie is getting on with his ACE stoma and how it has improved his quality of life. Follow Jodie - @jodie_mulrainey28 [https://www.instagram.com/jodie_mulrainey28/#]

Episode 128 - With Stephanie Luster

An episode full of twists and turns awaits, as Stephanie joins me to talk about her daughter with Total Colonic Hirschsprung's Disease, this is most certainly not a straightforward case.In this episode we discuss the power of faith to get through difficult moments , as well how a supportive community is incredibly beneficial.Enjoy the episode

Episode 127 - With Zandra Thomas

Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures, ultimately ending in the colostomy that has significantly maintained Zacari's quality of life.Enjoy the episode