Unstoppable Strides: Navigating Runner's Dystonia

Exploring Oral Therapy with Dr. Bernard Ravina of Vima Therapeutics

Julie sits down with Dr. Bernard Ravina, CEO and founder of Vima Therapeutics. His company is developing a drug that looks promising in helping those with dystonia.  Vima Therapeutic website [https://vimatx.com/] Vima Therapeutics team [https://vimatx.com/about-us/] Site for current Phase 2 dystonia study into first oral medication. The study is named "Stride Dystonia [http://www.stridedystonia.com]" Survey done [https://mydigitalpublication.com/publication/?i=855424&p=20&view=issueViewer] with the Dystonia Medical Research Foundation (DMRF [https://dystonia-foundation.org/]).   Support the show [https://www.buymeacoffee.com/dystonia] The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can find us here: Julie Bergfeld - julie@juliebergfeld.com [julie@juliebergfeld.com] and juliebergfeld.com [https://juliebergfeld.com] (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com [joellef510@gmail.com]

Where we are with Dystonia Research with Neurologist Erik van Wensen

Neurologist Erik van Wensen [https://www.movementdisordersgroningen.com/en/erik-van-wensen] shares his personal story and where we are with current understanding and research in the area of dystonia and specifically task-specific sports dystonia.  Mentioned in the recording: EMDR - Eye Movement Desensitization and Reprocessing [https://www.emdria.org/] CBT - Cognitive Behavioral Therapy [https://www.simplypsychology.org/cognitive-therapy.html] Botox - Botulinum Toxin David Marsden [https://en.wikipedia.org/wiki/C._David_Marsden] Dystonia Medical Research  [https://dystonia-foundation.org/] Dart-Player Jules van Dongen Pedals and Points [https://dystonia-foundation.org/jules-van-dongen-launches-pedals-points-fundraiser-for-dmrf/] fundraiser for Dystonia You can support our work by contributing to research and by supporting the podcast.  [http://buymeacoffee.com/dystonia] Support the show [https://www.buymeacoffee.com/dystonia] The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can find us here: Julie Bergfeld - julie@juliebergfeld.com [julie@juliebergfeld.com] and juliebergfeld.com [https://juliebergfeld.com] (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com [joellef510@gmail.com]

Cervical Dystonia in a Runner with David Abelson

Julie has a conversation with Boulder, CO runner David Abelson. David has cervical dystonia and has been active in running for more than 30 years. In 2022, he developed dystonia and shares his 4 keys to his path of recovery.  "Don't give up" Mentioned in the podcast: Botox Colchicine Rapamycin Dr. Steven Frucht [https://nyulangone.org/doctors/1336157130/steven-j-frucht] at NYU-Langone Support the show [https://www.buymeacoffee.com/dystonia] The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can find us here: Julie Bergfeld - julie@juliebergfeld.com [julie@juliebergfeld.com] and juliebergfeld.com [https://juliebergfeld.com] (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com [joellef510@gmail.com]

EMDR Explained with Whitney Dittmar

Julie has a conversation with EMDR specialist, Whitney Dittmar, MA, LPC, EMDR Therapist for Athletes, Performance & Trauma Specialist Listed in the United States Olympic and Paralympic Committee Mental Health Directory (2025) for the Mental Health Directory. Eye Movement Desensitization and Reprocessing (EMDR) can be used with athletes and performers to enhance performance, break through mental and physical blocks.  EMDR is therapy that encourages the patient to focus on a traumatic memory while simultaneously experiencing bilateral stimulation (typically eye movements), which is associated with a reduction in the vividness and emotion associated with the memories. This therapy is an extensively researched, effective psychotherapy method proven to help recovery from trauma and PTSD symptoms. Research shows EMDR therapy as a helpful treatment for disorders such as anxiety, depression, OCD, chronic pain, addictions, and other distressing life experiences, and may even be more effective than Prozac in treatment.  * Learn more about Whitney Dittmar, MA LPC [https://emdrintensivesforathletes.com/emdr-therapist-for-athletes/] * EMDRIA [https://www.emdria.org/] to locate a therapist in your area Support the show [https://www.buymeacoffee.com/dystonia] The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can find us here: Julie Bergfeld - julie@juliebergfeld.com [julie@juliebergfeld.com] and juliebergfeld.com [https://juliebergfeld.com] (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com [joellef510@gmail.com]

Deep Brain Stimulation (DBS)

Julie talks with Stacey Ginesin and Dr. Iahn Cajigas [https://www.pennmedicine.org/providers/iahn-cajigas-gonzalez] about DBS [https://www.pennmedicine.org/treatments/deep-brain-stimulation]. We cover a lot of territory here, including how to get the procedure approved by Insurance, when DBS becomes a viable option, success rates, risks and Stacey's experience with dystonia and DBS surgery.  Support the show [https://www.buymeacoffee.com/dystonia] The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can find us here: Julie Bergfeld - julie@juliebergfeld.com [julie@juliebergfeld.com] and juliebergfeld.com [https://juliebergfeld.com] (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com [joellef510@gmail.com]