Lipoedema Diagnosis Without Overwhelm: Finding Answers, Support & the Right Care Team with Rose Kendell- Occupational Therapist
In this episode of the Lipoedema Empower You Podcast, Vanessa and Carrie are joined by Rosemary âRoseâ Kendell from Lymph Scar Occupational Therapy in Perth, Western Australia, for a deeply practical and reassuring conversation about lipoedema diagnosis.
Many women first discover lipoedema through social media, Google, Facebook groups, TikTok, Instagram, or even by entering their symptoms into ChatGPT. While online information can be a powerful starting point, it can also lead to confusion, fear, misinformation, and the feeling that you need to jump straight from âI think I have thisâ to âI need surgery.â
Rose helps us slow the process down.
Together, we explore what it can look like to seek a professional lipoedema assessment, how to find a practitioner with relevant training, and why a diagnosis can be the beginning of understanding your body more clearly â not the end of the journey.
In this conversation, we discuss:
* Why lipoedema can be missed or misunderstood by some health professionals
* Why your GP may still be an important part of your care team
* How to look for a qualified lymphoedema or lipoedema-aware practitioner
* The National Lymphoedema Practitioners Register and Lipoedema Australia resources
* What questions to ask before booking an assessment
* Why a report back to your GP can help educate and support your ongoing care
* What a lipoedema assessment may include
* Hormonal history, family history, symptoms, pain, heaviness, bruising and mobility
* SOZO bioimpedance testing and what it may help assess
* BMI, fat mass, waist-to-height ratio and why body composition can be complex in lipoedema
* The difference between lipoedema, lymphoedema, oedema and inflammation
* Why excess fluid does not always mean lymphoedema
* Why lipoedema and lifestyle-related weight can coexist
* Why âeat less, move moreâ often fails women with lipoedema
* How diagnosis can bring relief, grief, overwhelm and hope
* Why you do not need to buy every tool, garment or treatment immediately
* The power of building both a professional team and a supportive community
Rose explains that lipoedema is complex and can affect more than the size or shape of the body. It may involve pain, heaviness, inflammation, fluid changes, lymphatic considerations, body composition differences, mobility, mental health, and years of feeling dismissed or misunderstood.
This episode is especially helpful if you are wondering whether you may have lipoedema, preparing for your first assessment, trying to talk to your GP, or feeling overwhelmed by conflicting information online.
The key message: you deserve to be heard, assessed kindly, and supported with curiosity, evidence, and hope.
Research papers mentioned in this episode:
1. Lucy Melican & Megan Pfeffer
Waist-to-height ratio as an alternative measure to body mass index reduces the diagnosis of obesity in the lipoedema cohort
https://woundsinternational.com/journal-articles/waist-to-height-ratio-as-an-alternative-measure-to-body-mass-index-reduces-the-diagnosis-of-obesity-in-the-lipoedema-cohort/ [https://woundsinternational.com/journal-articles/waist-to-height-ratio-as-an-alternative-measure-to-body-mass-index-reduces-the-diagnosis-of-obesity-in-the-lipoedema-cohort/?utm_source=chatgpt.com]
2. Diogo Pinto da Costa Viana & Lucas Caseri CĂąmara
Metabolic Therapy for Lipedema: Can Tirzepatide Overcome the Treatment Gap?
https://journaljpri.com/index.php/JPRI/article/view/7664 [https://journaljpri.com/index.php/JPRI/article/view/7664?utm_source=chatgpt.com]
3.
Disclaimer:
This podcast is for education and lived-experience discussion only and is not medical advice. Please speak with your trusted healthcare provider before making changes to your health, treatment, nutrition, compression, movement or medical care.
Connect with us:
Website: https://lipoedemaempoweryou.com.au [https://lipoedemaempoweryou.com.au]
Email: hello@lipoedemaempoweryou.com.au