The Russell Silver Syndrome Podcast

Episode 015 - Part 2 - The Future

Kim is joined in this final episode with guest co-host, creative content producer, fellow RSS adult and friend Steph Robson.  They will discuss series 1 of the podcast and answer the question - did the series achieve the dreams and goals that were set out at the start of the creative process? They also discuss each of their favourite highlights from the series and explain the reasons for their choices - over a two-part episode, along with the questions: * Has creating this series between us, along with support from the TARSS group and other foundations, had a lasting impact on us personally. * Have our goals and dreams for this series been realised? * What feedback or questions have we received? * What is the future for the Russell Silver Syndrome podcast? Finally, they discuss the biggest question of all - will a second series be made?  Is it a viable option and their conclusion on whether they have decided to make it or not? This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit russellsilversyndromepodcast.substack.com [https://russellsilversyndromepodcast.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Episode 015 - The Future - Part 1

Kim is joined in this final episode with guest co-host, creative content producer, fellow RSS adult and friend Steph Robson.  They will discuss series 1 of the podcast and answer the question - did the series achieve the dreams and goals that were set out at the start of the creative process? They also discuss each of their favourite highlights from the series and explain the reasons for their choices - over a two-part episode, along with the questions: * Has creating this series between us, along with support from the TARSS group and other foundations, had a lasting impact on us personally. * Have our goals and dreams for this series been realised? * What feedback or questions have we received? * What is the future for the Russell Silver Syndrome podcast? Finally, they discuss the biggest question of all - will a second series be made?  Is it a viable option and their conclusion on whether they have decided to make it or not? This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit russellsilversyndromepodcast.substack.com [https://russellsilversyndromepodcast.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Episode 014 - Can we change society's view of our Dwarfism?

We ask the question in this episode - can we change society’s view of our form of Dwarfism? Kim is joined by four Russell Silver Syndrome people to discuss questions including: * Do you think it is important TARSS take part in trying to change the view many in society have of people with dwarfism/short stature? * What term do we find completely unacceptable in regards to terms people think of or say to people with short stature? * How do we identify ourselves? * Is this podcast series a positive proactive way to inform and educate people about RSS in particular? OUR GUESTS * Tod Tevebaugh * Imogen Reid - Instagram [https://www.instagram.com/imogenfaith_/] * Angel Carrola Hennig - Instagram [https://www.instagram.com/faithinsmallhands] | Facebook [https://www.facebook.com/faithinsmallhands] * Hillary Jorgensen - Instagram [https://www.instagram.com/hillarygrace5280] | Twitter [https://www.twitter.com/hillary5280] For more information about this syndrome and to listen to more episodes of this podcast visit www.russellsilversyndromepodcast.com [http://www.russellsilversyndrome].  This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit russellsilversyndromepodcast.substack.com [https://russellsilversyndromepodcast.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Episode 013 - Words of wisdom to those that follow in our footsteps

With the experience of living as Russell Silver Syndrome (RSS), three RSS women join Kim to share words of wisdom to those that follow in our footsteps. They talk about how our parents raised us. Goals they have set and have achieved, and words of experience they feel are important to share with families of younger RSS children. Find out more about this rare form of primordial dwarfism and listen to more episodes at www.russellsilversyndromepodcast.com [http://www.russellsilversyndromepodcast.com].  This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit russellsilversyndromepodcast.substack.com [https://russellsilversyndromepodcast.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Episode 012 - Kim's Parent's Perspective

Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years. They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim's childhood that they feel shows her personality and independence. Do they have any regrets with the choices they made for their daughter? If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child? What advice do they have for families with young RSS children now? Learn and listen to more episodes about this rare form of Dwarfism at www.russellsilversyndromepodcast.com [https://www.russellsilversyndromepodcast.com]. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit russellsilversyndromepodcast.substack.com [https://russellsilversyndromepodcast.substack.com?utm_medium=podcast&utm_campaign=CTA_1]