Celiac Diaries
In honor of Celiac Disease Awareness Month, this episode of Celiac Diaries dives into a conversation that isn’t talked about enough. I’m joined by Liz Purvis (@yeetthatwheat) to unpack a major misconception: celiac disease is often seen as a “white person disease” — but that perception may be contributing to people being misdiagnosed. Liz shares her non-traditional diagnosis story, including: * Having symptoms her entire life without answers * Being misdiagnosed for years * Navigating multiple conditions like IBS, PCOS, GERD, and functional dyspepsia * Dealing with nutrient deficiencies and chronic gut issues We also talk about the bigger picture: * How bias and gaps in the healthcare system can impact celiac diagnosis * Why underrepresented groups may be overlooked in testing * The emotional toll of not being believed by doctors * How to advocate for yourself when something feels off Plus, we get into: * “Anxious stomach” and mental health * Living with multiple diagnoses * Thoughts on gluten sensors * Liz’s advocacy work, Meta campaign, and behind-the-scenes of a gluten-free documentary If you’ve ever felt dismissed in your health journey — or want to better understand the realities of celiac disease beyond the stereotypes — this episode is for you. 🎙️ New episodes every month on Celiac Diaries News of the Week: A study found that Black patients with biopsy-confirmed celiac disease are significantly more likely to have negative blood tests — meaning the usual first screening tool (the TTG-IgA test) may not flag their condition even when they truly have it. * https://celiac.org/2024/02/15/whats-new-in-celiac-disease-news-study-reveals-black-patients-more-likely-to-receive-negative-blood-tests-for-biopsy-confirmed-celiac-disease/ [https://celiac.org/2024/02/15/whats-new-in-celiac-disease-news-study-reveals-black-patients-more-likely-to-receive-negative-blood-tests-for-biopsy-confirmed-celiac-disease/] 🎙️ Listen to more episodes of Celiac Diaries for real conversations on living gluten-free, navigating autoimmune disease, and becoming your healthiest, happiest self. ⭐ If this episode resonates, please rate, review, and share — it helps Celiac Diaries grow Make sure to like, subscribe, and comment to help more people in the celiac/ allergy community find these conversations. 💛 Connect with me: Podcast IG & TikTok: @celiacdiaries.co Lucia's Instagram: @luciainnyc Connect with Liz: @yeetthatwheat Musicmusic provided by epidemic sound. DisclaimerI’m not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.
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