Sister, You're Not Alone

Finally Getting Diagnosed at 46, Impacts on Quality of Life, and Failings of Medical Physicians: A Conversation with Dani

Dani, at the age of 46 finally recieved her diagnosis of VWD Type 1. After years of struggling with bleeding symptoms, several hospitalizations and traumatic incidents, she was able to put a name and a reason to what had been causing so many of the problems she'd faced over the years. Listen in as she describes her diagnosis story, the impact that it's had on her life and our discussion of physician's failure to recognize the signs of a bleeding disorder. Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721

Growing Up with Factor 1 (Fibrinogen) Deficiency, Surviving Hep C, and Endometrial Cancer: A Conversation with Angel

Angel grew up knowing she had Factor 1 Deficiency, having been diagnosed at a young age. Overall her symptoms have been mild to moderate, but like many women her journey has been a roller coaster. Listen in as we discuss her treatment journey from Cryoprecipitate to now being on prophylaxis with a factor concentrate, how she contracted Hepatitis C and successfully cleared it, and her experience of finding out she had endometrial cancer. She will always speak for awareness of investigating any unusual female symptoms...as she found out that symptoms and a bleeding disorder aren't always directly linked.   Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721

Clinical Research for the Advancement of Women's Care: A Conversation with Dr. Michelle Sholzberg

In today's episode I had the pleasure of speaking with my Hematologist, Dr. Michelle Sholzberg. She is a clinician-scientist with a focus on coagulation, the Division Head of Hematology-Oncology and the Medical Director of the Coagulation Laboratory at St. Michael's Hospital. Listen in as we discuss her current research projects that she is focused on as well as a review and discussion of current treatment options used in those with all types of VWD.  For more information feel free to contact the Comprehensive Hemophilia Care Centre at St. Michael's Hospital in Toronto. https://unityhealth.to/areas-of-care/programs-and-clinics/oncology-and-endoscopy/#st-michaels-hospital-hemophilia-clinic-5   Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721

Gynaecological Issues, Finding Solutions and Clinical Trials: A Conversation with Nicki

Nicki had been struggling with ovarian cysts for years, causing her to be in and out of the hospital, leaving her feeling that her issues were being dismissed. Until finally her symptoms and problems led to her diagnosis of VWD Type 1. While her diagnosis was later into her 20's she's felt it has been life changing! Listen in as she tells her story, what led to her diagnosis and the importance of participating in clinical trials to help advance healthcare for women.   Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721

Getting a Diagnosis, Family Guilt, and Navigating Dating & Relationships, As a Woman with a Bleeding Disorder: A Conversation with Lauren

After living the life where she was always told that it was normal to bleed heavy, she finally got her diagnosis at age 24. Listen in as she explains what led to her diagnosis, the impact this has had on her and the life of her family, and our discussion of how having a bleeding disorder affects dating and relationships. Feel free to connect with Lauren through her facebook page https://www.facebook.com/lauren.potier [https://www.facebook.com/lauren.potier]    Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721