Albinism Life podcast

Albinism 101 - The basics of albinism

Kristina Venning Rose sits down with Dr Jay Self, Paediatric ophthalmologist, and leading Albinism expert from Southampton UK. He explains the basics of albinism in an easy-to-understand way.

Albinism Life “Blending in at the opera”.

Luke has albinism and chats to Kristina Venning Rose about his experiences growing up, looking different, accepting himself and having an amazing career designing cruise ships which takes him all around the world. Find out about what happens we he goes to the opera!

Albinism Life - “I have been mistaken for colonel Sanders”

Ben is a student doing a degree to become a professional musician - he is a drummer. Ben talks about the challenges of living independently, his dislike for crossing roads and sunlight! We chat about falling off stage and the seasonal names we get called!

Albinism Life - When you find out your baby has albinism.

Jon & Debbie talk about their journey, finding out their daughter, Cleo had albinism. We discuss the early days and months after Cleo’s diagnosis, having more children, modelling and equipping their daughter with all the tools she will need to empower and enable her to advocate for herself.

Albinism life - “I know when you are chewing gum”

Adam is a deputy head teacher at a large secondary school in the UK. He is also a Paralympian, dad and an all round amazing positive person. We chat about the goalball, the challenges of teaching with albinism and how Adam can tell when the kids are chewing gum!