Care to Share

Elaine: Caring for two kids and running a support work business

Elaine is a carer for two of her three children. As a Malaysian Australian, Elaine experienced more nuanced difficulties as a carer, inspiring her to create her own support work business with her husband.  > I pretty much burned out a long time ago and that's okay. I don't think it's resilience. It's just do it. Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange. It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.  * Produced by Siobhan Moylan. * Sound Design by Melissa May. * Impact Studios Executive Producer is Sarah Gilbert.  The Carer Knowledge Exchange [https://www.carerknowledgeexchange.com.au/] brings together carers, former carers, researchers, policy makers and practitioners to share their knowledge and learn from each other, improving outcomes for carers by connecting research to practice.  The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au. [https://www.carerknowledgeexchange.com.au/]     Support for carers   https://www.carerknowledgeexchange.com.au/public/support-for-carers/  [https://www.carerknowledgeexchange.com.au/public/support-for-carers/ ] https://www.carergateway.gov.au/  [https://www.carergateway.gov.au/ ] You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Sibel: Caring for her adult son as a single parent and solo carer

Sibel's life took an unexpected turn when her son Ethan contracted pneumococcal meningitis at just two years old, leaving him with an acquired brain injury. Now twenty one years old, Ethan defies expectations and thrives despite his disabilities.  Sibel has faced challenges along the way from navigating the complexities of the NDIS to grappling with her own personal struggles.  > As carers, we're seen as informal supports. Everything outside of that is a formal support which would be paid support workers. My mind still grapples with this. > > It's very hard for somebody going through the day-to-day struggles of caring for someone with a disability to be considered 100% as an informal support. Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange. It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.  * Produced by Siobhan Moylan. * Sound Design by Melissa May. * Impact Studios Executive Producer is Sarah Gilbert.  The Carer Knowledge Exchange [https://www.carerknowledgeexchange.com.au/] brings together carers, former carers, researchers, policy makers and practitioners to share their knowledge and learn from each other, improving outcomes for carers by connecting research to practice.  The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au. [https://www.carerknowledgeexchange.com.au/]     Support for carers   https://www.carerknowledgeexchange.com.au/public/support-for-carers/  [https://www.carerknowledgeexchange.com.au/public/support-for-carers/ ] https://www.carergateway.gov.au/  [https://www.carergateway.gov.au/ ] You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Kiara: Caring for her autistic son with global developmental delay

Kiara’s caring role started when she was eight years old. At twenty-four, Kiara is a devoted mother to Rider, her three-year-old autistic son with global developmental delay. Rider's autism is characterized by severe sensory sensitivities and restrictive eating and other common symptoms she discusses in this episode.   Her son is Kiara’s inspiration and purpose and drives her determination.  > When I have conversations with people outside of this world and I say ‘Carer’ they instantly think, ‘Support Worker, Nurse.’ Yeah, no.   > > Carers are hidden. We are hidden behind our roles. Everything we do is hidden. Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange. It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.  * Produced by Siobhan Moylan. * Sound Design by Melissa May. * Impact Studios Executive Producer is Sarah Gilbert.  The Carer Knowledge Exchange [https://www.carerknowledgeexchange.com.au/] brings together carers, former carers, researchers, policy makers and practitioners to share their knowledge and learn from each other, improving outcomes for carers by connecting research to practice.  The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au. [https://www.carerknowledgeexchange.com.au/]     Support for carers   https://www.carerknowledgeexchange.com.au/public/support-for-carers/  [https://www.carerknowledgeexchange.com.au/public/support-for-carers/ ] https://www.carergateway.gov.au/  [https://www.carergateway.gov.au/ ] You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Najla: Caring for her husband with early onset dementia

Coming from a Middle Eastern Muslim background, Najla brings a unique perspective to the table. With decades of experience in vocational education and training, she's not just an expert in equity, diversity, and inclusion. As a carer for her husband dealing with younger onset dementia, and a carer for her father with dementia, Najla reshapes the way we look at disability and the care experience.   > My husband was diagnosed with dementia early onset, and my kids were devastated when I made the decision to continue to work. > > I expected it from the community. I expected it from my parents. I did not expect it from my adult children. We then had this terrible conflict. Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange. It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.  * Produced by Siobhan Moylan. * Sound Design by Melissa May. * Impact Studios Executive Producer is Sarah Gilbert.  The Carer Knowledge Exchange [https://www.carerknowledgeexchange.com.au/] brings together carers, former carers, researchers, policy makers and practitioners to share their knowledge and learn from each other, improving outcomes for carers by connecting research to practice.  The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au. [https://www.carerknowledgeexchange.com.au/]     Support for carers   https://www.carerknowledgeexchange.com.au/public/support-for-carers/  [https://www.carerknowledgeexchange.com.au/public/support-for-carers/ ] https://www.carergateway.gov.au/  [https://www.carergateway.gov.au/ ] You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Introducing... Series 2 with Najla, Kiara, Sibel and Elaine

Open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring. Break down the stigmas around care by hearing the stories of people who live this experience every day. In Series 2, you'll meet * Najla, a Middle Eastern Muslim Australian caring for her husband with early onset dementia. * Kiara, a young mum caring for her autistic toddler with global developmental delay. * Sibel, a single parent and solo carer of her adult son * Elaine, a Malaysian Australian caring for two of her three children and running her own support business Host Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange, asks questions like: * How does caring impact your mental health? * How do you deal with stigma around disability, illness and care in your cultural community? Care to Share is a UTS Impact Studios podcast. Series 2 is produced by Siobhan Moylan. Sound Design by Melissa May and Impact Studios Executive Producer is Sarah Gilbert.  The Carer Knowledge Exchange [https://www.carerknowledgeexchange.com.au/] brings together carers, former carers, researchers, policy makers and practitioners to share their knowledge and learn from each other, improving outcomes for carers by connecting research to practice.  The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au. [https://www.carerknowledgeexchange.com.au/]     Support for carers   https://www.carerknowledgeexchange.com.au/public/support-for-carers/  [https://www.carerknowledgeexchange.com.au/public/support-for-carers/ ] https://www.carergateway.gov.au/  [https://www.carergateway.gov.au/ ] You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.