Forsidebilde av showet Clearly KC Podcast

Clearly KC Podcast

Podkast av nationalkeratoconusfoundation

engelsk

Teknologi og vitenskap

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Les mer Clearly KC Podcast

Welcome to Clearly KC, a podcast produced by the National Keratoconus Foundation, featuring information about life with this eye disease. Each month, Dr. Melissa Barnett OD, a leading authority shares valuable insights, speaks with medical professionals who treat this condition and listens to patients and families affected by keratoconus. Our goal is to share information to help you manage your keratoconus, seek out the best treatment options and live a full and productive life. Clearly KC is for patients, family members, and medical professionals interested in learning more about KC. This podcast is intended to provide general information about KC and should not be considered an alternative to medical consultation and treatment with your eyecare provider. Dr. Melissa Barnett, OD, FAAO, FSLS is an internationally recognized expert in keratoconus and other conditions that affect the cornea. She is Director of Optometry at University of California, Davis. National Keratoconus Foundation is the oldest and largest organization dedicated to raising awareness of the eye disease keratoconus. Although based out of University of California, Irvine, NKFC’s reach is truly international. To learn more, visit nkcf.org

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39 Episoder

episode Episode 39: From Patient to Advocate: A Nurse Researcher's Story on Keratoconus cover

Episode 39: From Patient to Advocate: A Nurse Researcher's Story on Keratoconus

In this episode of Clearly KC, Dr. Melissa Barnett welcomes Deidra Bonner, PhD candidate, registered nurse, and keratoconus patient advocate. Drawing from both her clinical background and personal experience, Deidra shares how her diagnosis shaped her path toward research focused on the quality of life of individuals living with keratoconus. Together, they explore the realities of delayed diagnosis, the life-changing impact of scleral lenses, and the often-overlooked emotional, social, and functional challenges that extend far beyond visual acuity. Deidra also introduces a holistic framework for understanding the patient experience and discusses the importance of communication, emergency preparedness, and advocacy in navigating life with keratoconus. This episode offers a powerful perspective on what it truly means to care for the whole patient—and why listening to the lived experience is essential to improving outcomes.

20. april 2026 - 25 min
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