Forsidebilde av showet If We Knew Then - Down Syndrome Podcast

If We Knew Then - Down Syndrome Podcast

Podkast av Stephen and Lori Saux

engelsk

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Les mer If We Knew Then - Down Syndrome Podcast

We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.

Alle episoder

190 Episoder
episode 198. It's Liam's 16th Birthday! artwork

198. It's Liam's 16th Birthday!

This episode is a celebration of Liam and also a reflection of what the last 16 years have been. We discuss unfair societal constructs along with systemic flaws in education that people with Down syndrome face and how our collective advocacy will make a difference.  Episode Transcript: https://ifweknewthen701833686.wordpress.com/2026/02/18/198-its-liams-16th-birthday/2/ [https://ifweknewthen701833686.wordpress.com/2026/02/18/198-its-liams-16th-birthday/2/] Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com [https://www.IfWeKnewThen.com] to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

I går - 1 h 6 min
episode 197. An Update with Melissa Kynoch - Bertie's In School artwork

197. An Update with Melissa Kynoch - Bertie's In School

We reconnect with Melissa Kynoch, whom many will remember from the BBC documentary Life and Birth. Millions of viewers around the world were inspired by Melissa’s positivity and grace when her son Bertie was born with Down syndrome. Now, fix years later, Life and Birth is available in the United States on Amazon Prime, giving a whole new audience the opportunity to experience their story. Melissa shares an update on life and how Bertie is doing now that he’s in school. It’s a beautiful reflection on growth, joy and continuing to embrace each milestone with love and optimism. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2026/02/02/an-update-with-melissa-kynoch-berties-in-school/2/ [https://ifweknewthen701833686.wordpress.com/2026/02/02/an-update-with-melissa-kynoch-berties-in-school/2/] Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com [https://www.ifweknewthen.com/] to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

3. feb. 2026 - 1 h 9 min
episode 196. Buddy Up For Life with Beth Gibson artwork

196. Buddy Up For Life with Beth Gibson

Beth Gibson, Founder & Executive Director of Buddy Up for Life/Buddy Up Tennis, founded Buddy Up for Life in 2008 when her then 3 ½-year-old son, Will, who has Down syndrome, wanted to play tennis with his older brother. Beth realized there was a void in fitness programs for people with Down syndrome. And took the initiative to make her son’s dreams a reality, holding the first Buddy Up Tennis Clinic in December 2008 in Columbus, Ohio. Since then, the organization has expanded to 15 programs across three pillars (health & wellness, education, and friendship), with tennis as a cornerstone that has seen exponential growth nationwide. Buddy Up Tennis is now a weekly, high-energy adaptive tennis program for athletes ages 5 and up where volunteer buddies are partnered with athletes to provide support, develop friendships, and have fun while playing tennis. The program is now nationally recognized as the leader in impacting the lives of individuals with Down syndrome and Buddy Up for Life currently has 850 athletes, 1,400 buddies, 130 coaches and instructors and 42 chapters nationwide, a number that continues to grow. Beth continues to lead Buddy Up for Life, with her son, Will, now a college student. She has made it her life’s mission to embrace what it means to live with Down syndrome and help participants live a life that redefines expectations and breaks traditional boundaries. Learn more at their Website [https://buddyupforlife.org/] and Instagram [https://www.instagram.com/buddyupforlife/]. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/11/25/196-buddy-up-for-life-with-beth-gibson/2/ [https://ifweknewthen701833686.wordpress.com/2025/11/25/196-buddy-up-for-life-with-beth-gibson/2/] Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com [https://www.ifweknewthen.com/] to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

26. nov. 2025 - 1 h 1 min
episode 195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh artwork

195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh

Here is another beautiful conversation we had with Dr. Vaish Sarathy and her son, poet Sid Ghosh who has published a book of poetry titled Yellow Flower Fills Me Whole. Sid has a duel diagnosis of Autism and Down syndrome and previously appeared on the podcast, with Vaish, to discuss non-linear education and how he communicates using a letter board.  Sid’s poetry book is available through Amazon or at this Milkweed link: https://milkweed.org/book/yellow-flower-gills-me-whole [https://milkweed.org/book/yellow-flower-gills-me-whole] Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/11/10/195-yellow-flower-gills-me-whole-poetry-by-sid-ghosh/2/ [https://ifweknewthen701833686.wordpress.com/2025/11/10/195-yellow-flower-gills-me-whole-poetry-by-sid-ghosh/2/] Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com [https://www.ifweknewthen.com/] to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

11. nov. 2025 - 1 h 1 min
episode 194. That’s Not How It Happened: A Novel By Craig Thomas artwork

194. That’s Not How It Happened: A Novel By Craig Thomas

In this episode, we sit down with How I Met Your Mother co-creator Craig Thomas to talk about his new novel, That’s Not How It Happened. The novel is about a family whose lives are thrown into turmoil when a Hollywood producer turns their story into a movie, forcing them to confront their differing perspectives on their past and the challenges of raising their son, Emmett, who has Down syndrome. It was inspired by Craig’s son, Elliott, who lives with a rare condition called Jacobsen Syndrome and is on sale starting November 4, 2025. We were introduced to Craig through our dear friends Jenna Fischer and Angela Kinsey, the hosts of the Office Ladies podcast. Jenna and Angela have been such loyal supporters of If We Knew Then and we’re so grateful to them for connecting us with Craig. That introduction led to a heartfelt and honest conversation that we are excited to share with you. You can order Craig Thomas's new book from major booksellers like Barnes & Noble [https://www.barnesandnoble.com/w/thats-not-how-it-happened-craig-thomas/1146932212], Amazon.com [https://www.amazon.com/Thats-Not-How-Happened-Novel-ebook/dp/B0DVWJKHM2/ref=sr_1_1?crid=2PEWFSRG334MN&dib=eyJ2IjoiMSJ9.jj39x45rnOFJmdcr7_YqjD0lxmLpRqDugafu1nVKrnJFvshGMYmj5NwJjsHNlQ9YRP_nJbTSToCi4UMFZfDt-2yNTzaiel6GtRYBG-Iz4Uo.1AEmw8qo-2uXNlGLValfEV0CAUj1iLI-5qpY7C0nvAE&dib_tag=se&keywords=that%27s+not+how+it+happened&qid=1762135808&s=digital-text&sprefix=that%27s+not+how+it+happened%2Cdigital-text%2C179&sr=1-1], HarperCollins Publishers [https://www.harpercollins.com/products/thats-not-how-it-happened-craig-thomas], and other retailers. Also, check out Craig’s How I Met Your Mother rewatch podcast called How We Made Your Mother, which he co-hosts with Josh Radnor. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/11/02/194-thats-not-how-it-happened-a-novel-by-craig-thomas/2/ [https://ifweknewthen701833686.wordpress.com/2025/11/02/194-thats-not-how-it-happened-a-novel-by-craig-thomas/2/] Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com [https://www.ifweknewthen.com/] to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

3. nov. 2025 - 59 min
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