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Parkinson's Policy Podcast

Podkast av Power Over Parkinson's and Together for Sharon

engelsk

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Les mer Parkinson's Policy Podcast

From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.

Alle episoder

10 Episoder

episode Vermont! First State to Pass Ban on Parkinson's-Linked Pesticide Paraquat cover

Vermont! First State to Pass Ban on Parkinson's-Linked Pesticide Paraquat

In this episode of the Parkinson’s Policy Podcast, we sit down with Representative Brian Cina, a Vermont legislator and sponsor of the bill to ban paraquat, a widely used herbicide linked to Parkinson’s disease and other serious health concerns. We discuss the growing body of research connecting environmental toxins to Parkinson’s, the policy efforts underway in Vermont, and why advocates, scientists, patients, and lawmakers are pushing for stronger protections against harmful chemical exposure. Rep. Cina shares insights into the legislative process, the challenges of advancing environmental health policy, and why public awareness and grassroots advocacy matter. This conversation highlights the intersection of science, public health, and policy—and the importance of taking action to reduce exposure to potentially dangerous environmental chemicals.

18. mai 2026 - 35 min
episode Parkinson’s Policy Podcast Episode 7: Deborah Swerdlow & Ken Chason (Parkinson's Foundation) cover

Parkinson’s Policy Podcast Episode 7: Deborah Swerdlow & Ken Chason (Parkinson's Foundation)

In this episode of the Parkinson’s Policy Podcast, we sit down with Deborah Swerdlow, Head of Policy at the Parkinson’s Foundation, and Ken Chason, a dedicated patient advocate and member of the Foundation’s Patient Policy Advisory Council (PPAC), for a timely and insightful conversation on the future of Parkinson’s policy. Together, we explore the most pressing policy challenges impacting the Parkinson’s community today, from access to care and affordability of treatments to the need for increased research funding and stronger support systems for patients and caregivers. Deborah shares an inside look at how policy priorities are shaped at the Foundation, while Ken brings a powerful, lived-experience perspective on why patient voices must remain central to policymaking. We also dive into what needs to happen next at both the state and federal levels to drive meaningful change, highlighting opportunities for advocacy and ways listeners can get involved. Whether you’re living with Parkinson’s, caring for someone who is, or working in healthcare, policy, or advocacy, this episode offers valuable insights into how policy decisions shape real-world outcomes, and how you can be part of the solution. More information for on the Parkinson’s Foundation’s policy work can be found here:  https://www.parkinson.org/how-to-help/policy-advocacy-priorities

4. mai 2026 - 34 min
episode Parkinson's Policy Podcast Episode 5: Geoff Horsfield (Environmental Working Group) cover

Parkinson's Policy Podcast Episode 5: Geoff Horsfield (Environmental Working Group)

In this episode of the Parkinson’s Policy Podcast, we speak with Geoff Horsfield, Legislative Director at the Environmental Working Group. Together, we explore the herbicide paraquat and its emerging connection to Parkinson’s Disease. Geoff breaks down the latest policy developments, the science behind paraquat exposure, and why this issue is gaining national attention. We also discuss what constituents can do to advocate for change, including practical strategies for engaging with lawmakers and making their voices heard. Whether you're directly impacted by Parkinson’s or interested in environmental health policy, this episode provides actionable insights and guidance on how to drive meaningful advocacy. Contact geoff.horsfield@ewg.org to get involved or ask questions The Paraquat Resource Library that the EWG has put together:  https://docs.google.com/document/d/1N3W5H9vpUvpFtk6iLmdwfcJ5xroTJBiW_pr3LblsxVg/edit?tab=t.0#heading=h.7iu5y1z4k82f

21. april 2026 - 31 min
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