Forsidebilde av showet Raising Rosie: The Rest of the Story

Raising Rosie: The Rest of the Story

Podkast av Melanie Kandzierski

engelsk

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Les mer Raising Rosie: The Rest of the Story

I’m Melanie, a Gen X mom raising my granddaughter Rosie, who lives with Dravet syndrome. This podcast shares the full, unfiltered story of caregiving, grief, palliative care, and parenting a medically complex child. No highlight reels—just truth, love, and the hard parts we usually keep quiet. Follow @raisingrosie_dravet on TikTok, IG, & Threads. Welcome to Raising Rosie: The Rest of the Story.

Alle episoder

10 Episoder

episode The Keeper of Holiday Magic cover

The Keeper of Holiday Magic

This wasn’t the Christmas I planned—but it ended up being exactly what someone else needed. In this final episode of the year, I’m sharing how a quiet day meant just for me and Rosie turned into something so much more when I realized my grieving niece had nowhere to go for the holidays. She’s pregnant. She’s heartbroken. And she’s trying to be a mom through it all. So I answered the call I’ve known my whole life as the oldest daughter and oldest granddaughter: I dusted off the holiday magic. I found the cherry cordials. I opened the Coca-Cola in glass bottles. I baked the cranberry muffins. And in doing that, I passed on something sacred—not just memories, but legacy. This episode is about what happens when joy and grief share a table. It’s about stepping into a new home, a new chapter, and recognizing the parts of yourself that survived the storm. It’s about building traditions from scratch, holding space for healing, and reclaiming your power in small, quiet ways. As we head into 2026, I’m holding tight to one truth: language is everything. Because when we name what we’re going through, we take away its power to isolate us. And that’s what this podcast is here for.

26. des. 2025 - 9 min
episode Redefining Holiday Magic: The Ghosts, the Grief, and the Grace cover

Redefining Holiday Magic: The Ghosts, the Grief, and the Grace

The holidays rarely go as planned—especially when you’re navigating grief, caregiving, and change. In this episode, I take you through the “Ghosts of Christmas Past” in our life—diaper blowouts with COVID, hospital discharges on Christmas Eve, pizza and Chinese takeout as tradition—and what it’s taught me about redefining joy. This isn’t about picture-perfect holidays. It’s about boundaries, bravery, and permission. Permission to protect your peace. Permission to say no. Permission to celebrate your own way—shrimp cocktail, fancy desserts, and all. At the heart of this episode is a gentle, but fierce reminder: you don’t need the holiday you thought you’d have to find the meaning that matters. You just need to believe in your version of the

19. des. 2025 - 19 min
episode Inclusion Isn’t a Favor—It’s a Foundation cover

Inclusion Isn’t a Favor—It’s a Foundation

What happens when inclusion is treated like a luxury instead of a basic right? In this episode, I peel back the layers of performative inclusion and bring us into the real, raw experience of fighting for access, dignity, and belonging as the caregiver of a medically complex child. From historical moments like the Capitol Crawl to personal stories about my local library and changing Rosie on public restroom floors, this episode is part history lesson, part emotional gut punch, and part rally cry. You’ll learn how features we take for granted—curb cuts, texting, captions—were born out of disability advocacy, and why inclusion isn’t just about disability. It’s about humanity. ✨ Plus: A shout-out to The Inclusion Effect podcast by Anna Kohl, where powerful inclusion conversations continue weekly. This isn’t about asking for too much. This is about asking for the bare minimum—and knowing you’re not alone.

12. des. 2025 - 14 min
episode The Loneliness of Doing It All cover

The Loneliness of Doing It All

This one’s for every caregiver who has felt surrounded—but still alone. In this episode, I’m peeling back the layers of invisible labor that come with doing it all: parenting, caregiving, managing systems, surviving systems, and holding everything together with hands that never get a break. I talk about the illusion of help, the weight of performative support, and the breaking point that led me to a deeper truth—one I think many of us know too well. We’ll talk about what it really takes to make life “look manageable,” the difference between parenting and caregiving, and why well-meaning phrases like “God doesn’t give you more than you can handle” often miss the mark. This is the episode I wish I had in my darkest, most overextended moments—and maybe it’s one you need today too. You’re not too much. You’re just doing too much, for too long, without enough support. You are not alone.

6. des. 2025 - 7 min
episode The Dreams We Didn’t Know We’d Have to Grieve cover

The Dreams We Didn’t Know We’d Have to Grieve

Before we ever held our babies in our arms, many of us already carried dreams in our hearts. First birthdays and first days of school. Dance recitals and soccer games. College move-ins. Careers. Weddings. A life imagined. A future assumed. But when a diagnosis comes—when you’re told your child has epilepsy, or Down syndrome, or a congenital heart defect, or cerebral palsy—or a rare disease so uncommon you have to teach the doctors how to spell it—those dreams begin to shift. Sometimes they vanish. And no one really prepares you for the ache that comes with that kind of loss. This episode is about that grief. The kind that arrives before the meal trains, before the therapies, before the new routines. The kind that shows up long before acceptance or strength or even language. If you’ve ever found yourself grieving the version of motherhood you never got to have… this one is for you.

29. nov. 2025 - 6 min
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