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The Purple Orange Podcast

Podkast av JFA Purple Orange

engelsk

Personlige historier og samtaler

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A mix of first person stories, discussions and explorations of issues relevant to the disability community.

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36 Episoder

episode "You Don't Look Sick": Living with Invisible Disability cover

"You Don't Look Sick": Living with Invisible Disability

When Nicole Edmunds first became unwell, doctors told her it was stress, anxiety, or poor sleep. But she knew her body — and she knew something wasn’t right. After months of medical gaslighting and self-doubt, Nicole was diagnosed with POTS: Postural Orthostatic Tachycardia Syndrome — a form of dysautonomia that affects the autonomic nervous system and is often invisible to others. In this honest and moving episode, Nicole shares what it’s like to live with an invisible disability in a world that rewards performance over rest, and productivity over pacing. She speaks about identity, relationships, and how exhausting it is to prove your pain when no one can see it. Whether you have an invisible disability or want to understand how to be a better ally to someone who does — this story is for you. Listen now and reflect on how we make space — or don’t — for people with invisible disability. Resources mentioned in this episode: * Australian POTS Foundation [https://potsfoundation.org.au/] * Dysautonomia International [https://www.dysautonomiainternational.org/] * Standing Up to POTS [https://www.standinguptopots.org/] * The Ehlers-Danlos Society [https://www.ehlers-danlos.com/]

3. okt. 2025 - 16 min
episode Black people can be disabled: Breaking the cycle of disability stereotypes cover

Black people can be disabled: Breaking the cycle of disability stereotypes

What happens when the world refuses to see who you really are? When Khadija Gbla was diagnosed as autistic in their 30s, it brought relief — and grief for all the years spent masking, misunderstood. In this powerful episode, they reflect on cultural stigma, disability, racism, and how becoming a parent helped them begin to heal and rewrite the story. Born in Sierra Leone and resettled in Australia as a teenager, Khadija’s story is one of survival, identity, and fierce love — especially for their son, Sammy, who is also autistic. With honesty and strength, Khadija shares how racism, ableism and cultural stigma collided throughout their life, and how they’re now rewriting the narrative — for themselves and for the next generation. “I wish I had had somebody like me to realise that Black girls can also be disabled.” Listen now to hear a story of strength, claiming identity, and the power of self-acceptance and understanding. Listen to Khadija's TED talk about female genital mutilation. [https://www.youtube.com/watch?v=a4n0zcsdoN0] Download the transcript for Black people can be disabled: Breaking the cycle of disability stereotypes [https://purpleorange.org.au/stories/purple-orange-podcast-series]

5. sep. 2025 - 15 min
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