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Seen, Not Fixed

Podkast av Spoonly

engelsk

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Les mer Seen, Not Fixed

A fireside-style podcast for people living with chronic illness and the people who want to understand them better. Each episode features an intimate conversation between our host, a lived experience guest, and a trusted expert, blending life with practical, empowering insight. This is a space for validation, honest conversations, and reminders that your illness is part of your story but it doesn’t get to define all of it.

Alle episoder

10 Episoder

episode No Mud, No Lotus: Choosing Joy Through Chronic Illness with Sally Joy Wolf cover

No Mud, No Lotus: Choosing Joy Through Chronic Illness with Sally Joy Wolf

In this deeply honest and hopeful episode of Seen, Not Fixed, Gigi sits down with metastatic breast cancer advocate Sally Joy Wolf to talk about what it truly means to thrive while living with chronic illness. From navigating a stage 4 cancer diagnosis to redefining identity, purpose, and joy, Sally shares how she transformed unimaginable uncertainty into a life rooted in meaning, advocacy, and connection. Together, they explore the concept of “no mud, no lotus,” the idea that suffering can become the soil for growth, and unpack the difference between toxic positivity and authentic hope. The conversation dives into post-traumatic growth, patient advocacy, the emotional realities of chronic illness, and the power of choosing how we move through hardship. This episode is a reminder that a diagnosis does not define a person, and that even in life’s hardest moments, there is still room for joy, purpose, movement, and deep human connection.

10. mai 2026 - 38 min
episode The New Normal: Energy, Pacing, and Life with Limited Spoons cover

The New Normal: Energy, Pacing, and Life with Limited Spoons

This episode explores the psychological and emotional realities of living with chronic illness through a conversation between Nicole and Dr. Rachel, a behavioral medicine psychologist. They unpack the deep connection between thoughts, emotions, and behaviors, highlighting how unhelpful thinking patterns like “should” statements, catastrophizing, and rigid thinking can keep people feeling stuck. The conversation emphasizes practical mindset shifts, including focusing on what’s within your control, taking small and sustainable steps, and building awareness of your mind-body connection. They also address the importance of self-advocacy in healthcare, grieving the loss of a former identity, and finding a balanced, realistic form of optimism that honors both difficulty and possibility. Ultimately, the episode offers grounded tools to help listeners feel more in control, supported, and compassionate toward themselves.

22. mars 2026 - 48 min
episode The Empowered Patient: Scripts, Questions, and Communication Frameworks cover

The Empowered Patient: Scripts, Questions, and Communication Frameworks

In this episode of Seen Not Fixed, host Nicole Pedra is joined by chronic illness advocate Anja Vesterhus Knustad and clinical hypnotherapist Lucy Seligman ACC, CCHT for an honest conversation about living with invisible illness. Anja shares her experience growing up with ME (myalgic encephalomyelitis) and the profound ways it reshaped her life from childhood, while Lucy reflects on decades of living with fibromyalgia and how that journey led her to become a practitioner supporting others with chronic pain. Together they explore the emotional weight of not being believed, the misconceptions that surround fatigue and chronic illness, and the reality of advocating for yourself within healthcare systems that often struggle to understand invisible conditions. The conversation also highlights the role of hope, self compassion, pacing, and nervous system based healing practices in building a meaningful life alongside illness. This episode offers listeners validation, practical insights on self advocacy, and a reminder that even in the face of chronic illness, connection, understanding, and purpose are still possible.

8. mars 2026 - 43 min
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