Donor Diaries

Send us a text [https://www.buzzsprout.com/twilio/text_messages/1748941/open_sms] Sue Rees returns to share the revolutionary donor protections offered by the Alliance for Paired Kidney Donation (APKD) that are making kidney donation more accessible and equitable for everyone. As Chief Operating Officer with over 25 years of transplant experience, Sue walks us through the comprehensive "Donor Protect" program designed to eliminate financial barriers while safeguarding donors' futures. We explore how the Alliance reimburses lost wages (up to $10,000), covers travel expenses for both donors and their support persons, and even provides dependent and pet care assistance. Sue explains their innovative "Home Advantage" program, which allows donors to recover locally while their kidneys are shipped to recipients across the country. Most fascinating are the various pledge programs that protect donors and their loved ones: the Advanced Donation Pledge, the Family Pledge, the Friend Pledge, and the Kidney Promise. The conversation takes a global turn as Sue reveals how APKD's international initiatives are creating life-saving matches across borders. "Our differences can save our lives," she explains, sharing the remarkable story of a Mexican poet with 94% antibodies who found her match in Wisconsin. This global kidney exchange program demonstrates how genetic diversity across populations can be the key to finding matches for highly sensitized patients. Sue's personal journey into transplant care adds emotional depth to the discussion. After losing her father to glioblastoma, she was profoundly moved by his nurse's compassion: "I want to be that for somebody," she decided. Today, through her work with the Alliance, Sue helps give second chances to patients and families facing medical crises. Whether you're considering donation or simply curious about advances in transplant care, this episode offers invaluable insights into the protections that make kidney donation safer and more accessible than ever before. SHOW LINKS: Alliance for Paired Kidney Donation Donor Protect [https://paireddonation.org/] Mexican Kidney Exchange Story [https://web.stanford.edu/~alroth/NewsweekEnEspanol.pdf] Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast] GiftWorks Website [https://yourgiftworks.com/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe]

Send us a text [https://www.buzzsprout.com/twilio/text_messages/1748941/open_sms] What happens when a transplant surgeon, a Nobel Prize-winning economist, and a willingness to trust strangers come together? A revolution in kidney donation that has saved 20,000 lives and counting. Meet Dr. Michael Rees and Sue Rees, the power couple behind the Alliance for Paired Kidney Donation. In this captivating first installment of our two-part season finale, we journey back to 2007 when kidney paired exchange was in its infancy and most surgeons believed all transplant surgeries had to happen simultaneously to prevent donors from backing out. Dr. Rees takes us behind the scenes of his radical experiment: what if we trusted donors to follow through on their promises even after their loved ones received kidneys? The medical establishment warned this trust-based approach could collapse the entire system. Undeterred, Mike vetted the first chain participant over a steak dinner, separated surgeries by weeks instead of performing them simultaneously, and created what would become what is now a common practice- Non‑Simultaneous Extended Altruistic-Donor chains. Sue shares the heartbreaking reality that confronted her as a transplant coordinator: watching patients remain on dialysis despite having willing but incompatible donors. Through their pioneering work with the Alliance's sophisticated matching algorithm, the Rees’ have transformed how we think about organ donation, proving that human goodness and trust can overcome medical skepticism and logistical challenges. Whether you're curious about organ donation, inspired by medical innovation, or simply love stories of human connection, this episode reminds us that our differences—even incompatible blood types—can ultimately save each other's lives. SHOW LINKS: Alliance for Paired Kidney Donation [https://paireddonation.org/] New England Journal of Medicine Article [https://www.nejm.org/doi/full/10.1056/NEJMoa0803645] People Magazine Article [https://www.utoledo.edu/offices/communications/pdfs/people11.30.09.pdf] Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast] GiftWorks Website [https://yourgiftworks.com/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe]

Send us a text [https://www.buzzsprout.com/twilio/text_messages/1748941/open_sms] A spiritual calling, a kidney voucher, and two pastors reconnecting after decades apart—this is no ordinary transplant story. When Jim Pearl was diagnosed with Fabry's disease in 2004, he had no idea his journey would lead him back to Jeff Barker, a seminary friend from the '90s. After five years on dialysis, Jim clung to his mantra: "In the waiting, God is working." Meanwhile, Jeff saw Jim's Facebook post and felt a spiritual nudge to step forward, despite knowing little about kidney donation. Though not a direct match, Jeff became a voucher donor donating at NYU Langone. His kidney went to someone in the NKR system, and Jim received a kidney voucher due to Jeff’s donation. Just three months later, Jim received his transplant at University of Utah Health. For both pastors, the experience was deeply spiritual. Jim named his kidney "Gigi" (God’s Gift). Jeff sees the donation as part of Christian incarnational theology—"We often think about giving money, but we can give our very selves." GiftWorks supported them throughout the journey, helping Jim share his story widely and guiding Jeff through the donation process. Their experience shows how organ donation not only saves lives, but also renews connections, deepens faith, and transforms both donor and recipient. Jim’s advice for recipients: "Share your story as broadly as possible. It only takes one set of eyes." Jeff encourages potential donors to remember: "Your first yes is not your final yes. Each step requires thought, and each decision matters." Learn more at yourgiftworks.com and consider how making yourself available to others can be a part of something greater. Links: Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe] GiftWorks [https://yourgiftworks.com/] Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast] GiftWorks Website [https://yourgiftworks.com/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe]

Send us a text [https://www.buzzsprout.com/twilio/text_messages/1748941/open_sms] What if a casual Sunday scroll through Facebook could save a life? In this heartfelt episode of Donor Diaries, Rich and Cali share the extraordinary story of how a social media post led to a life-saving kidney transplant and an unexpected lifelong connection. Rich, living with polycystic kidney disease, feared the wait for a deceased donor and the possibility of having to go on dialysis, and took a leap of faith by sharing his story online. Cali, grieving the loss of her brother to the same disease, stumbled upon Rich’s post and felt an unshakable pull to help. Neither could have predicted the twist of fate that would link them even closer—Rich had once been her brother’s boss. Their journey is one of vulnerability, determination, and the incredible power of human connection. From meticulously tracking spreadsheets to navigating emotions and medical evaluations, both Rich and Cali approached the process with equal heart and grit. In the end, their story reminds us that sharing our struggles can spark unexpected miracles—and that even the smallest connections can change lives. Rich and Cali represent a major milestone; they were the first successful kidney transplant to come out of the GiftWorks Program pilot. The GiftWorks Program is built on three core pillars that support both transplant recipients and those who step forward as living donors: Education, Support, and Advocacy.   To learn more about the GiftWorks program that helped make this match possible, visit yourgiftworks.com [https://yourgiftworks.com] and check out our show notes. Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe] GiftWorks [https://yourgiftworks.com/] Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast] GiftWorks Website [https://yourgiftworks.com/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe]

Send us a text [https://www.buzzsprout.com/twilio/text_messages/1748941/open_sms] Join us on Donor Diaries as we welcome Dr. Harry Wilkins, CEO of Gift of Hope, who transitioned from a 36-year career as a trauma surgeon to leading an organ procurement organization in 2020. With his unique perspective as both a physician and an industry leader, Dr. Wilkins offers a rare behind-the-scenes look at the complex and deeply personal world of deceased organ donation. From the moment of injury to the life-changing decisions families face, he sheds light on the critical role OPOs play in guiding and supporting donor families through the process. A Chicago native, Dr. Wilkins shares how his childhood fascination with car mechanics unexpectedly led him to a career in surgery, a path shaped by his family's strong values of faith and service. Now, he is driven by a bold vision: a future where no one dies waiting for an organ. He discusses the transformative potential of xenotransplantation, 3D-printed organs, living donation, and emerging advancements in organ preservation—what he calls a growing set of tools in the transplant toolbox. Throughout our conversation, Dr. Wilkins highlights the dedication of his team at Gift of Hope and their relentless work to save lives every day. He also explores the importance of dispelling myths about organ donation, increasing public awareness, and fostering a culture where donation is the norm. This episode is an eye-opening look at the challenges and breakthroughs shaping the future of deceased organ transplantation—and the innovative solutions that could one day eliminate transplant waitlists. Tune in for an inspiring and informative discussion with one of the field’s most passionate advocates. Gift of Hope [https://giftofhope.org/] National Organ Donor Registry Sign-up [https://www.organdonor.gov/sign-up] Harry Wilkins Bio [https://giftofhope.org/team/harry-wilkins-md/] The Art of Effective Physician Education (Book) [https://www.amazon.com/Art-Effective-Physician-Communication-Fundamental/dp/B0858VHQ4W] Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe] GiftWorks [https://yourgiftworks.com/] Donor Diaries Website [https://donordiaries.com/] Donor Diaries on Facebook [https://www.facebook.com/DonorDiariesPodcast] GiftWorks Website [https://yourgiftworks.com/] Connect with Laurie Lee [https://linktr.ee/LaurieDickinsonLEe]