73 lesions, a drained 401k, and a movement. In honor of Endo Action Month, a special episode with Nicole Notar.
You can’t mindfulness your way out of a system that wasn’t built for you and no amount of wellness hacks will fix a CPT code that’s actively working against you.
In this week’s special episode ahead of a congressional briefing for Endometriosis and Adenomysosis at Capitol Hill, and in honor of Endo Action month, we sat down with Nicole, founder of Endo Excision for All — a nonprofit with one mission: get endo patients the gold standard of care, regardless of what’s in their bank account. Nicole spent 15 years dismissed, misdiagnosed, and bounced between 50+ gynecologists before draining her 401k to fund a surgery that found 73 lesions and changed her life. What came next wasn’t just recovery. It was rage, then action.
We get into the real reason excision surgery isn’t covered by insurance (spoiler: surgeries on men are reimbursed higher than those on women, across the board), why gynecologists keep performing ablations that don’t work, what’s happening on Capitol Hill right now, and why March 10th matters.
Policy is medicine. And it’s time we started treating it that way.
We want to hear from you
Have you ever been denied coverage for excision surgery? Have you ever felt like navigating the healthcare system was a second full-time job? What would change for you if policy actually caught up with the science?
Nothing is TMI. Slide into our DMs on Instagram.
Because friendship is medicine. But sometimes, friendship needs backup from a senator.
Subscribe so you don’t miss the next episode. The truth has always been in the tea. ☕
Connect with us:
Instagram: https://www.instagram.com/chronically_female@chronically_female [https://www.instagram.com/chronically_female]
Website: https://chronicallyfemale.comchronicallyfemale.com [https://chronicallyfemale.com]
Find Nicole & Endo Excision for All:
Nonprofit & Patient Surgery Fund: https://www.endoexcisionforall.orgendoexcisionforall.org [https://www.endoexcisionforall.org]
Patient-Vetted Excision Surgeon Directory: available on the Endo Excision for All website
Women’s Health Advocates: https://www.womenshealthadvocates.orgwomenshealthadvocates.org [https://www.womenshealthadvocates.org]
Endo Hill Day — March 10th: Register and find your state’s meeting at the Endo Excision for All website
Content Warning & Medical Disclaimer: This episode discusses medical trauma, insurance denials, chronic pain, surgical recovery, and reproductive health. Nothing in this episode should be taken as medical advice, go see your doctor!