Rare Care Podcast

225: An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Craig Martin, founder and CEO of the Orphan Therapeutics Accelerator (OTXL) — a nonprofit biotech dedicated to advancing shelved clinical-stage therapies for ultrarare diseases.

224: An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henriette Farkas, MD, PhD, director of the Hungarian Angioedema Reference Center in Budapest, and a world expert on the treatment of HAE.

223: An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antón Blatnik, PhD, who recently won a $150,000 grant from Cure SMA to study the molecular mechanisms that drive neuromuscular disease and gene expression.

222: An Interview With SMA Expert and Neurologist Dr. Kathryn Swoboda

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kathryn Swoboda, MD, faculty emerita at Massachusetts General Hospital and a neurologist and rare disease specialist who's been working on SMA for nearly 30 years.

221: An Interview With Dutch Neurologist Ewout Groen of SMA Europe

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dutch neurologist Ewout Groen, PhD, a member of the Scientific Advisory Board of SMA Europe.