The Myeloma Minutes

037 From Patient to Author: Jonathan Gluck’s Myeloma Story

Author Jonathan Gluck shares his deeply personal experience of living with myeloma, reflecting on diagnosis, uncertainty, treatment, resilience and what it means to build a life alongside cancer. 📌Key Takeaways: *  How do you live with uncertainty? Jonathan shares the lessons myeloma taught him.  *  A diagnosis can change your life - but it doesn’t have to define it.  *  One patient’s story of resilience, perspective and finding hope in unexpected places. Find Jonathan's book here: Amazon UK [https://www.amazon.co.uk/Exercise-Uncertainty-Memoir-Illness-Hope/dp/0593735781/ref=sr_1_1?crid=1BJMZIBULO40S&dib=eyJ2IjoiMSJ9.zHZ6optB2-VrtOofqptrd3ajULOl8Q3oS0GS1Xtf-77GjHj071QN20LucGBJIEps.5_2Cat_EFP9lmaFWv4LX_qCnBnf_e-3iwMIWb2tkr_Q&dib_tag=se&keywords=jonathan+gluck&qid=1780998960&sprefix=jonathan+gluck%2Caps%2C115&sr=8-1] For extra content and more resources, please visit our website: https://www.themyelomaminutes.com/ [https://www.themyelomaminutes.com/] We are proudly partnered with Myeloma UK for this episode. For more credible myeloma advice, please visit: https://www.myeloma.org.uk/ [https://www.myeloma.org.uk/] The Myeloma UK InfoLine is: 0800 980 3332 This podcast is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional for personalised medical guidance regarding your health concerns ABOUT YOUR HOSTS Dr Jam Kothari (@myeloma_medic) is an Oxford based blood cancer doctor, specialising in the treatment of multiple myeloma and associated conditions. He has been a consultant for a decade, and leads the provision of myeloma care for Oxford and neighbouring areas. He lectures regionally and nationally and leads clinical trials investigating the use of new treatments for myeloma. He is a strong believer in patient based, holistic care, delivered with warmth, clarity and integrity.   Dr Sally Moore is a Bristol based consultant who specialises in treating patients living with multiple myeloma and other plasma cell disorders. She oversees the delivery of clinical research studies for myeloma patients and has academic interests in how to maximise quality of life for patients and improve outcomes in older, less fit patients.  She frequently contributes to myeloma related educational events for fellow doctors and healthcare professionals at a local, regional and national level and is an active member of the UK Myeloma Research Alliance and an executive member of the UK Myeloma Society.

036 Infection and Myeloma - Staying Safe Without Stopping Life

This episode explores why people with myeloma are more vulnerable to infection, how treatments affect immunity, and the practical steps patients and carers can take to stay well. 📌Key Takeaways: * Myeloma and its treatments can weaken the immune system - but the risk changes over time.  * Fever, coughs or feeling “not quite right” should never be ignored - early treatment matters. * From vaccines to exercise and preventative antibiotics, small steps can make a big difference.  For extra content and more resources, please visit our website: https://www.themyelomaminutes.com/ [https://www.themyelomaminutes.com/] We are proudly partnered with Myeloma UK for this episode. For more credible myeloma advice, please visit: https://www.myeloma.org.uk/ [https://www.myeloma.org.uk/] The Myeloma UK InfoLine is: 0800 980 3332 This podcast is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional for personalised medical guidance regarding your health concerns ABOUT YOUR HOSTS Dr Jam Kothari (@myeloma_medic) is an Oxford based blood cancer doctor, specialising in the treatment of multiple myeloma and associated conditions. He has been a consultant for a decade, and leads the provision of myeloma care for Oxford and neighbouring areas. He lectures regionally and nationally and leads clinical trials investigating the use of new treatments for myeloma. He is a strong believer in patient based, holistic care, delivered with warmth, clarity and integrity.   Dr Sally Moore is a Bristol based consultant who specialises in treating patients living with multiple myeloma and other plasma cell disorders. She oversees the delivery of clinical research studies for myeloma patients and has academic interests in how to maximise quality of life for patients and improve outcomes in older, less fit patients.  She frequently contributes to myeloma related educational events for fellow doctors and healthcare professionals at a local, regional and national level and is an active member of the UK Myeloma Research Alliance and an executive member of the UK Myeloma Society.

035 Blood Clots and Myeloma - What Every Patient Should Know

This episode explains why people with myeloma are at higher risk of blood clots, how blood thinners help, and the warning signs patients and carers should never ignore. 📌Key Takeaways: * Myeloma and some myeloma treatments can increase the risk of dangerous blood clots. * Simple steps like staying hydrated, keeping mobile and taking blood thinners correctly really matter. * Leg swelling, chest pain or sudden breathlessness should never be ignored : Fast treatment saves lives. For extra content and more resources, please visit our website: https://www.themyelomaminutes.com/ [https://www.themyelomaminutes.com/] We are proudly partnered with Myeloma UK for this episode. For more credible myeloma advice, please visit: https://www.myeloma.org.uk/ [https://www.myeloma.org.uk/] The Myeloma UK InfoLine is: 0800 980 3332 This podcast is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional for personalised medical guidance regarding your health concerns   ABOUT YOUR HOSTS Dr. Jam Kothari Dr Jam Kothari (@myeloma_medic) is an Oxford based blood cancer doctor, specialising in the treatment of multiple myeloma and associated conditions. He has been a consultant for a decade, and leads the provision of myeloma care for Oxford and neighbouring areas. He lectures regionally and nationally and leads clinical trials investigating the use of new treatments for myeloma. He is a strong believer in patient based, holistic care, delivered with warmth, clarity and integrity.   Dr. Sally Moore Dr Sally Moore is a Bristol based consultant who specialises in treating patients living with multiple myeloma and other plasma cell disorders. She oversees the delivery of clinical research studies for myeloma patients and has academic interests in how to maximise quality of life for patients and improve outcomes in older, less fit patients.  She frequently contributes to myeloma related educational events for fellow doctors and healthcare professionals at a local, regional and national level and is an active member of the UK Myeloma Research Alliance and an executive member of the UK Myeloma Society.

034 Pain in Myeloma - Understanding It and Taking Back Control

This episode explores why pain happens in myeloma, how it affects daily life, and the many ways it can be managed - from painkillers to specialist support. 📌Key Takeaways: * Myeloma pain is common - but it can almost always be improved with the right approach. * Pain relief isn’t just tablets - treatments, radiotherapy and targeted procedures all play a role. * Uncontrolled pain affects everything - so speak up early and often to get the help you need. For extra content and more resources, please visit our website: https://www.themyelomaminutes.com/ [https://www.themyelomaminutes.com/] We are proudly partnered with Myeloma UK for this episode. For more credible myeloma advice, please visit: https://www.myeloma.org.uk/ [https://www.myeloma.org.uk/] The Myeloma UK InfoLine is: 0800 980 3332 This podcast is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional for personalised medical guidance regarding your health concerns   ABOUT YOUR HOSTS Dr. Jam Kothari Dr Jam Kothari (@myeloma_medic) is an Oxford based blood cancer doctor, specialising in the treatment of multiple myeloma and associated conditions. He has been a consultant for a decade, and leads the provision of myeloma care for Oxford and neighbouring areas. He lectures regionally and nationally and leads clinical trials investigating the use of new treatments for myeloma. He is a strong believer in patient based, holistic care, delivered with warmth, clarity and integrity.   Dr. Sally Moore Dr Sally Moore is a Bristol based consultant who specialises in treating patients living with multiple myeloma and other plasma cell disorders. She oversees the delivery of clinical research studies for myeloma patients and has academic interests in how to maximise quality of life for patients and improve outcomes in older, less fit patients.  She frequently contributes to myeloma related educational events for fellow doctors and healthcare professionals at a local, regional and national level and is an active member of the UK Myeloma Research Alliance and an executive member of the UK Myeloma Society.

033 MRD Explained: How Much Myeloma Is Really Left

This episode explains minimal residual disease (MRD) - what it is, how it’s measured, and how it could shape more personalised myeloma treatment in the future. 📌Key Takeaways: * Even when blood tests look ‘normal’, tiny amounts of myeloma can still remain - MRD helps find it. * Reaching MRD negativity is a powerful sign - it often means longer, deeper remission. * In the future, MRD could decide when to stop, reduce or restart treatment - but we’re not quite there yet. For extra content and more resources, please visit our website: https://www.themyelomaminutes.com/ [https://www.themyelomaminutes.com/] We are proudly partnered with Myeloma UK for this episode. For more credible myeloma advice, please visit: https://www.myeloma.org.uk/ [https://www.myeloma.org.uk/] The Myeloma UK InfoLine is: 0800 980 3332 This podcast is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional for personalised medical guidance regarding your health concerns   ABOUT YOUR HOSTS Dr. Jam Kothari Dr Jam Kothari (@myeloma_medic) is an Oxford based blood cancer doctor, specialising in the treatment of multiple myeloma and associated conditions. He has been a consultant for a decade, and leads the provision of myeloma care for Oxford and neighbouring areas. He lectures regionally and nationally and leads clinical trials investigating the use of new treatments for myeloma. He is a strong believer in patient based, holistic care, delivered with warmth, clarity and integrity.   Dr. Sally Moore Dr Sally Moore is a Bristol based consultant who specialises in treating patients living with multiple myeloma and other plasma cell disorders. She oversees the delivery of clinical research studies for myeloma patients and has academic interests in how to maximise quality of life for patients and improve outcomes in older, less fit patients.  She frequently contributes to myeloma related educational events for fellow doctors and healthcare professionals at a local, regional and national level and is an active member of the UK Myeloma Research Alliance and an executive member of the UK Myeloma Society.