One Immune Voice

Episode 6: Living well (CP-359593)

The One Immune Voice podcast series has been developed and funded by Janssen-Cilag Ltd in partnership with 6 patient organisations. For people living with an autoimmune or immune-mediated condition, ongoing support is needed to help manage your condition, whether from healthcare professionals, family and friends, patient organisations or learning how to best manage your condition yourself. In episode 6 of One Immune Voice our host Claudia Hammond is joined by guests Clare Jacklin, the Chief Executive Officer of the National Rheumatoid Arthritis Society, and Rachel Ainley, Head of Research and Evidence at Crohn's & Colitis UK, to discuss this further. In particular, they focus on the idea of Supported Self-Management, which we began to explore in episode 5. In this episode, we delve further into the support that patient organisations have to offer, which can form a key part of managing a condition and the steps that individuals can take, alongside input from their healthcare team. Navigating support can seem intimidating, so tune in to hear about the steps that can be taken to build a supported self-management network. For further information and support you can visit the patient organisations’ websites/social media pages. www.crohnsandcolitis.org.uk www.ibdrelief.com www.lupusuk.org.uk www.nass.co.uk www.nras.org.uk www.psoriasis-association.org.uk If you find this episode of One Immune Voice useful please don’t forget to subscribe and share. CP-360774: February 2023

Episode 5: Supported self-management (CP-359587)

The One Immune Voice podcast series has been developed and funded by Janssen-Cilag Ltd in partnership with 6 patient organisations. For those living with an autoimmune or immune-mediated condition, coping with the challenges that come with it is something that nobody should face alone. This is where the concept of ‘Supported Self-Management’ is key. Perhaps you have heard of it already, but if you’d like to find out more tune in to this episode of One Immune Voice. For episode 5, our host Claudia Hammond is joined by Seb Tucknott, Co-Founder and CEO of IBD Relief, and Sally Dickinson, Head of Information and Support Services at the National Axial Spondyloarthritis Society (NASS), to explore how supported self-management can shape and improve people’s lives. Our guests discuss tips on how to reach out to those around you for support; healthcare professionals, patient organisations, friends or family, and who may be best to turn to depending on what support you need. For further information and support you can visit the patient group websites/social media pages. www.crohnsandcolitis.org.uk www.ibdrelief.com www.lupusuk.org.uk www.nass.co.uk www.nras.org.uk www.psoriasis-association.org.uk If you find this episode of One Immune Voice useful please don’t forget to subscribe and share. CP-360774: February 2023

Episode 4: Navigating the healthcare system (CP-359583)

The One Immune Voice podcast series has been developed and funded by Janssen-Cilag Ltd in partnership with 6 patient organisations. With the health service over-stretched and under increasing pressure, navigating the healthcare system effectively is even more important for people living with autoimmune and immune-mediated conditions. In this episode, we explore how to get the most out of healthcare appointments and how to maximise the services available to support day-to-day living with a condition, as well as when flare-ups occur. Our host, Claudia Hammond, is joined in episode 4 by Alida Horne, Volunteer Coordinator from Lupus UK and Dominic Urmston, Patient Advocacy and Communications Manager, from the Psoriasis Association . They discuss what 'joined-up' health services look like and how to get the most from the support available following a diagnosis. For further information and support you can visit the patient group websites/social media pages. www.crohnsandcolitis.org.uk www.ibdrelief.com www.lupusuk.org.uk www.nass.co.uk www.nras.org.uk www.psoriasis-association.org.uk If you find this episode of One Immune Voice useful please don’t forget to subscribe and share. CP-360774: February 2023

Episode 3: Understanding the healthcare service journey before getting a diagnosis (CP-359580)

The One Immune Voice podcast series has been developed and funded by Janssen-Cilag Ltd in partnership with 6 patient organisations. In Episode 3 of One Immune Voice, we explore how people can best navigate healthcare services to help them get a diagnosis. We explore where to go for support and what to do when you feel you aren’t being listened to. Our host Claudia Hammond is joined by Ruth Wakeman, Director of Services, Policy and Evidence at Crohn’s & Colitis UK and Dr Dale Webb, Chief Executive of the National Axial Spondyloarthritis Society (NASS). They discuss common issues people may face before diagnosis as well as giving practical tips for how to discuss symptoms with healthcare professionals. For further information and support you can visit the patient group websites/social media pages. www.crohnsandcolitis.org.uk www.ibdrelief.com www.lupusuk.org.uk www.nass.co.uk www.nras.org.uk www.psoriasis-association.org.uk If you find this episode of One Immune Voice useful please don’t forget to subscribe and share. CP-360774: March 2023

Episode 2: Prioritising mental health in your healthcare discussions (CP-359577)

The One Immune Voice podcast series has been developed and funded by Janssen-Cilag Ltd in partnership with 6 patient organisations. For those living with autoimmune and immune-mediated conditions, mental health and physical health often go hand in hand meaning mental health problems are just as important to treat as physical symptoms. However, despite this, during appointments with healthcare professionals, mental health and wellbeing often isn't discussed. In episode 2 Claudia Hammond is joined by Paul Howard, Chief Executive Officer of Lupus UK and Seb Tucknott, Co-founder and CEO of IBD Relief. They discuss some suggestions for managing your mental health and wellbeing and where you can go for support. For further information and support you can visit the patient group websites/social media pages. www.crohnsandcolitis.org.uk www.ibdrelief.com www.lupusuk.org.uk www.nass.co.uk www.nras.org.uk www.psoriasis-association.org.uk If you find this episode of One Immune Voice useful please don’t forget to subscribe and share. CP-360774: February 2023