Celiac Diaries

Celiac Isn’t Just a ‘White Person Disease’ — The Diagnosis Gap No One Talks About (Episode #25)

In honor of Celiac Disease Awareness Month, this episode of Celiac Diaries dives into a conversation that isn’t talked about enough. I’m joined by Liz Purvis (@yeetthatwheat) to unpack a major misconception: celiac disease is often seen as a “white person disease” — but that perception may be contributing to people being misdiagnosed. Liz shares her non-traditional diagnosis story, including: * Having symptoms her entire life without answers * Being misdiagnosed for years * Navigating multiple conditions like IBS, PCOS, GERD, and functional dyspepsia * Dealing with nutrient deficiencies and chronic gut issues We also talk about the bigger picture: * How bias and gaps in the healthcare system can impact celiac diagnosis * Why underrepresented groups may be overlooked in testing * The emotional toll of not being believed by doctors * How to advocate for yourself when something feels off Plus, we get into: * “Anxious stomach” and mental health * Living with multiple diagnoses * Thoughts on gluten sensors * Liz’s advocacy work, Meta campaign, and behind-the-scenes of a gluten-free documentary If you’ve ever felt dismissed in your health journey — or want to better understand the realities of celiac disease beyond the stereotypes — this episode is for you. 🎙️ New episodes every month on Celiac Diaries News of the Week: A study found that Black patients with biopsy-confirmed celiac disease are significantly more likely to have negative blood tests — meaning the usual first screening tool (the TTG-IgA test) may not flag their condition even when they truly have it. * https://celiac.org/2024/02/15/whats-new-in-celiac-disease-news-study-reveals-black-patients-more-likely-to-receive-negative-blood-tests-for-biopsy-confirmed-celiac-disease/ [https://celiac.org/2024/02/15/whats-new-in-celiac-disease-news-study-reveals-black-patients-more-likely-to-receive-negative-blood-tests-for-biopsy-confirmed-celiac-disease/] 🎙️ Listen to more episodes of Celiac Diaries for real conversations on living gluten-free, navigating autoimmune disease, and becoming your healthiest, happiest self. ⭐ If this episode resonates, please rate, review, and share — it helps Celiac Diaries grow Make sure to like, subscribe, and comment to help more people in the celiac/ allergy community find these conversations. 💛 Connect with me: Podcast IG & TikTok: @celiacdiaries.co Lucia's Instagram: @luciainnyc Connect with Liz: @yeetthatwheat Musicmusic provided by epidemic sound. DisclaimerI’m not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.

The Guy Gluten-Free Experience: Dating, Frat Life & College Struggles (Episode #24)

In this episode of Celiac Diaries, I’m joined by Felim Meade (@feedmefay), a gluten-free college creator sharing what it’s really like navigating dietary restrictions in college (without even having a formal diagnosis) and the male gluten-free experience. We talk about: * What happens when you don’t have a diagnosis (and can’t get accommodations) * The reality of being gluten-free in college dining halls * Dating with celiac (and some very embarrassing moments) * The social pressure to “just eat it” * Cross contamination struggles * Using tools like the NIMA sensor * Why gluten-free is often misunderstood * And his idea for gluten-free vending machines 👀 This episode dives into a perspective that’s rarely talked about — the male experience with celiac and what it’s like navigating it in college. If you’ve ever felt misunderstood, left out, or like a burden because of your dietary restrictions… this one is for you. 🎙️ Listen to more episodes of Celiac Diaries for real conversations on living gluten-free, navigating autoimmune disease, and becoming your healthiest, happiest self. ⭐ If this episode resonates, please rate, review, and share — it helps Celiac Diaries grow Make sure to like, subscribe, and comment to help more people in the celiac/ allergy community find these conversations. 💛 Connect with me: Podcast IG & TikTok: @celiacdiariespod Lucia's Instagram: @lucia.cordaroo Connect with Felim:@feedmefay Musicmusic provided by epidemic sound. DisclaimerI’m not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.

Autoimmune Coach on Why Being Healthy Feels So Hard—And How to Build Habits in a World Set Up Against You (Episode #23)

If you’ve ever felt like you’re doing everything “right” — trying to eat healthy, stay consistent, build better habits — but still struggling to feel your best… this episode is for you. In honor of Autoimmune Disease Awareness Month, I’m joined by autoimmune health coach, Amy Behimer, Pharm.D., NBC-HWC, to talk about the truth no one is saying: 👉 it’s not just you — the world we live in is often set up in a way that makes being healthy harder. Especially if you’re living with celiac disease or another autoimmune condition, navigating your health can feel overwhelming, restrictive, and frustrating. But what if your diagnosis could actually become a tool to help you build a healthier, more intentional life? In this episode, we break down how to shift your mindset, build sustainable habits, and take back control of your health — without relying on extreme discipline or perfection. ✨ In this episode, we cover: * Why being healthy feels so hard in today’s world * How your environment impacts your habits more than you think * Why you don’t have a discipline problem * How to build sustainable, habit-based routines * The importance of sleep, rest, and recovery * The power of mindset when living with celiac disease * How to reframe a gluten-free lifestyle in a positive way * Why you’re being “fed” by more than just food (your environment, content, and inputs) * How to start becoming the healthiest version of yourself If you’re navigating celiac disease, autoimmune health, or just trying to feel better in your body, this episode will help you stop blaming yourself — and start building a lifestyle that actually works for you. 🎙️ Listen to more episodes of Celiac Diaries for real conversations on living gluten-free, navigating autoimmune disease, and becoming your healthiest, happiest self. ⭐ If this episode resonates, please rate, review, and share — it helps Celiac Diaries grow Make sure to like, subscribe, and comment to help more people in the celiac/ allergy community find these conversations. 💛 Connect with me: Podcast IG & TikTok: @celiacdiariespod Lucia's Instagram: @lucia.cordaroo Connect with Amy:https://linkpages.pro/b5ojnO 🎙: Autoimmune Health Secrets Podcast IG: @amybehimercoaching Website: www.amybehimercoaching.com Musicmusic provided by epidemic sound.DisclaimerI’m not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.

Hot Girls Have Celiac Disease — And Going Gluten Free Doesn’t Fix Everything (Episode #22)

Hot girls have celiac disease — but going gluten free doesn’t magically fix everything. In this episode of Celiac Diaries, I sit down for a real, girly chat with Justi from @Celiac_Baddie about what no one tells you after your diagnosis. We talk about the reality of autoimmune fatigue, still having symptoms after going gluten free, and the confusion that can come with trying to “do everything right” — but still not feeling 100%. We get into: * Persistent constipation (yes, we’re saying it) * Depression & anxiety as celiac symptoms * Nutrient deficiencies and long-term management * The gaslighting so many of us experience * Finding out things aren’t actually gluten free * Why meeting with the right dietitian matters * Navigating relationships with celiac disease * Living gluten free in NYC vs Miami * And our biggest pet peeves with “gluten friendly” If you’ve ever thought, “Why am I still tired?” “Why do I still feel off?” “Am I doing something wrong?” This episode is for you. You’re not crazy. You’re not dramatic. And you’re definitely not alone. Welcome back to your wellness girlie safe space 🤍 🎧 New episodes every Wednesday ⭐ If this episode resonates, please rate, review, and share — it helps Celiac Diaries grow Make sure to like, subscribe, and comment to help more people in the celiac/ allergy community find these conversations. 💛 Connect with me: Podcast IG & TikTok: @celiacdiariespod Lucia's Instagram: @lucia.cordaroo Justi's Insta/TikTok: @celiac_baddie Musicmusic provided by epidemic sound. Disclaimer I’m not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.

Are We Thinking About Gluten-Free Food All Wrong? The Founder Who Built a Celiac-Safe Brand by Accident (Episode #21)

In this episode of Celiac Diaries, I’m joined by Carlos Santos, founder of NADAS — the NYC-born empanada company that has quietly become a safe haven for the celiac and food allergy community. Carlos doesn’t have celiac disease or food allergies. Yet his brand has become one of the most trusted gluten-free, top-allergen-free, high-protein food options on the market. We talk about: • Building a food startup in NYC during COVID • Starting with pop-ups and scaling into retail • Creating an empanada that happens to be gluten free — not a “substitute” version • Navigating the fine line between marketing to everyday consumers and the gluten-free community • Why Nada’s refuses artificial dyes and uses vegetables for natural color • The challenges of staying true to clean ingredients in CPG • What it really takes to build a food brand in a “phone eats first” culture • Advice for founders If you care about safe food, ingredient integrity, entrepreneurship, or the future of inclusive CPG brands — this one is for you. 🎧 New episodes every Wednesday ⭐ If this episode resonates, please rate, review, and share — it helps Celiac Diaries grow Make sure to like, subscribe, and comment to help more people in the celiac/ allergy community find these conversations. 💛Connect with me: Podcast IG & TikTok: @celiacdiariespod Lucia's Instagram: @lucia.cordaroo NADAS Instagram: @eatnadas Musicmusic provided by epidemic sound. Disclaimer I’m not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.