Living with FASD

FASD & Masking with Alice Foote

In this episode, Patti Kasper sits down with Alice Foote, an FASD advocate from the UK who is currently vacationing in the United States. Alice shares her unique journey of being diagnosed at birth but not learning of her condition until age 16. They discuss the challenges of "masking," the necessity of rigid routines, and the physical symptoms of fetal alcohol spectrum disorders that often go overlooked by medical professionals. Key Discussion Points * The "Late" Realization: Although diagnosed at birth, Alice was raised as a neurotypical person until her grandmother explained her struggles with concentration at age 16. * The Power of Routine: Alice describes how structure is vital to her daily life, from her specific morning coffee ritual and airplane-mode work habits to maintaining the same breakfast table and time even while on vacation. * Masking and Authenticity: Alice talks about the exhausting nature of "masking" to appear normal and her recent decision to let her true personality show more, including her impulsive excitement for things like meeting a Minion at Universal Studios. * Workplace Advocacy: In the UK, while FASD itself isn't under the Equality Act, its symptoms are. Alice shares how she worked with HR to implement infographics and clear communication strategies to help her succeed in a call center environment. * Physical Symptoms & Medical Ignorance: Alice and Patti discuss how FASD is a "whole-body diagnosis". Alice shares her experiences with physical issues, such as losing feeling in her legs, and the frustration of having to educate her own doctors about her condition. * The "Invisible" Disability: Alice emphasizes that just because someone "looks normal" or can drive a car doesn't mean they aren't fighting a "whole different continent" internally. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com [livingwithfasdpodcast@gmail.com]. Visit her website at www.patriciakasper.com [http://www.patriciakasper.com] to learn more about her coaching and professional development training services, or visit https://calendly.com/kaspertrainingandcoaching/consultation [https://calendly.com/kaspertrainingandcoaching/consultation] to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach [http://www.books.by/yourfasdcoach] or Amazon. (Both print on demand, but due to lower overhead costs, books.by [http://books.by] is able to pay its authors a few more dollars in royalties.) Please remember to like, subscribe & share, so that even more people can learn about FASD.

The Neurobiology of Migraines in FASD: What You Need to Know

This episode features Dr. Jerrod Brown, Jodee Kulp, and host Patti Kasper discussing the complex relationship between migraines and FASD. They explore neurobiological mechanisms, triggers, co-occurring conditions, and practical interventions to manage migraines, especially in individuals with FASD. Action  items: Consult healthcare providers for personalized migraine management Implement lifestyle changes such as sleep, diet, and stress reduction Explore trauma-informed approaches and family system interventions Research and consider specialized pain management options Be on the lookout for Dr. Brown’s new podcast, to launch soon. To pick up a copy of Jodee’s memoir of her journey with parenting Liz, Iridescent Spoon: Colors of Courage, go to https://books.by/jodee-kulp/iridescent-spoon [https://books.by/jodee-kulp/iridescent-spoon] If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com [livingwithfasdpodcast@gmail.com]. Visit her website at www.patriciakasper.com [http://www.patriciakasper.com] to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation [http://calendly.com/kaspertrainingandcoaching/consultation] to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach [http://www.books.by/yourfasdcoach] or Amazon. (Both print on demand, but due to lower overhead costs, books.by [http://books.by] is able to pay its authors a few more dollars in royalties.) Chapters 00:00 Introduction to Migraines and FASD 02:57 Understanding the Complexity of Migraines 06:09 The Impact of Migraines on Quality of Life 08:53 The Relationship Between Migraines and Comorbidities 11:56 Neuroscience of Migraines 15:08 The Role of the Gut-Brain Axis 17:57 Migraines in Children and Adolescents 20:47 Pregnancy and Migraines 23:56 Conclusion and Future Directions 32:35 Exploring the Connection Between Autism and Migraine 34:03 Gut-Brain Axis and Environmental Factors 36:30 The Impact of Medication on Health 37:44 Understanding the Biopsychosocial Model 38:13 Life's Essential Eight and Migraine Management 40:10 The Role of Executive Function and Trauma 42:40 Identifying Triggers and Coping Strategies 45:11 Family Dynamics and Migraine Impact 50:43 Lifestyle Medicine Approaches to Migraine 55:05 Therapeutic Interventions and Self-Management 57:57 Research Gaps and Future Directions

Unlocking Emotional Intelligence for Neurodivergent Minds: A Conversation with Morgane Borzee

In this episode, Patti Kasper chats with Morgane Borzee about a groundbreaking visual system that revolutionizes how we understand and regulate emotions, especially in neurodivergent communities like those affected by FASD. If you're ready to see emotions as protective parts and learn how to navigate them, this episode is your new best friend! In this episode: * Morgane Borzee’s journey from trauma therapy to emotional intelligence mapping * The importance of visual tools in understanding emotional responses * How emotional parts like the tiger, bunny, koala, and seagull symbolize our defense mechanisms * The neural research behind stress responses and trauma * Practical ways to use visual maps for emotional regulation and self-awareness * How this system can prevent re-traumatization and improve relationships * The role of parts work in healing attachment and authenticity issues * The power of non-judgmental language around emotions * Resources: tools, training programs, and how to access Morgane’s work To reach Morgane and explore her program, visit equanima.io [http://equanima.io]. Her website offers many free resources. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com [livingwithfasdpodcast@gmail.com]. Visit her website at www.patriciakasper.com [http://www.patriciakasper.com] to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation [http://calendly.com/kaspertrainingandcoaching/consultation] to schedule a complimentary call. To pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to https://books.by/yourfasdcoach [https://books.by/yourfasdcoach]. Large print edition is on Amazon.

A Complicated and Beautiful Brain: Reframing FASD with Angela Geddes

In this episode, Patti Kasper engages in a candid conversation with Angela Geddes, a social worker and author, about the complexities of Fetal Alcohol Spectrum Disorder (FASD). They discuss the challenges of diagnosis, the impact of FASD on families, and the role of social workers in raising awareness and providing support. Angela shares her personal experiences and insights from her work in the field, emphasizing the importance of early intervention and the need for better education and training on FASD. The conversation highlights the societal implications of FASD and the necessity for a compassionate understanding of those affected by it. Takeaways FASD is often misunderstood and misdiagnosed. Early intervention can significantly improve outcomes for individuals with FASD. Social workers play a crucial role in advocating for FASD awareness. The stigma surrounding alcohol use during pregnancy needs to be addressed. Families affected by FASD often face systemic challenges and trauma. Education on FASD should be integrated into all relevant professional training programs. Personal experiences can provide valuable insights into the challenges of FASD. There is a need for more resources and support for adults with FASD. The prevalence of FASD is higher than commonly recognized. Compassionate support is essential for individuals and families affected by FASD. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com [livingwithfasdpodcast@gmail.com]. Visit her website at www.patriciakasper.com [http://www.patriciakasper.com] to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation [http://calendly.com/kaspertrainingandcoaching/consultation] to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach [http://www.books.by/yourfasdcoach] or Amazon. (Both print on demand, but due to lower overhead costs, books.by [http://books.by] is able to pay its authors a few more dollars in royalties.) If you would like to pick up copies of Angela’s books, you can find them all on Amazon. ·         A Complicated and Beautiful Brain – ASIN # B0F8NJ95CB ·         Not Your Typical Growing Up & Adulting Guide – ASIN # B0GJS7LFF6 ·         Not Your Typical Growing Up & Adulting Guide  WORKBOOK – ASIN # B0GJT9ZKD8 ·         Not Your Typical Parenting Guide – ASIN # B0F8N3N3ZS ·         Not Your Typical Teaching Guide - ASIN # B0FJ796V7G Amazon in Canada also has French editions of several of these titles. To access the free FASD checklist Angela offers on her website, visit: https://www.angelageddes.ca/professional-development/geddes-customized-support-tool [https://www.angelageddes.ca/professional-development/geddes-customized-support-tool] To reach Angela, email her at angela@angelageddes.ca [angela@angelageddes.ca]. Follow Angela’s podcast, Kitchen Table Conversations, on your favorite podcast platform!

Finding Calm in Chaos: Practical Strategies for Emotional Regulation with AJ Loashio

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards [http://www.womenpodcasters.com/awards] and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD! Voting ends April 30th! In this episode, Patti Kasper and AJ Locascio delve back into the complexities of emotional regulation, exploring practical strategies to help individuals ground themselves and regain a sense of safety. They discuss the importance of laughter, activity, sleep, creative expression, and intimate connections in the regulation process. The conversation also touches on the significance of creating a 'nest' for emotional release, practicing mindful self-compassion, and understanding sensory systems. They emphasize the role of gratitude and celebration in fostering emotional well-being, while also addressing the challenges of grief and loss. Takeaways Laughter can be a powerful tool for emotional regulation. Being active helps to ground and regulate emotions. Sleep is essential for emotional and physical health. Creative expression can serve as a form of regulation. Intimate connections can enhance emotional safety. Creating a 'nest' can provide a safe space for emotional release. Mindful self-compassion helps in managing negative thoughts. Understanding sensory systems is crucial for self-regulation. Grief and gratitude can coexist in the healing process. Celebration can be a form of regulation and connection. As always, please remember to like, subscribe & share this podcast episode, because it is by doing these things that more people can find the podcast and learn about FASD. To reach Patti Kasper, perhaps to suggest topics or guests, or to ask questions, or even just to say hello, email her at livingwithfasdpodcast@gmail.com [livingwithfasdpodcast@gmail.com] . To reach Patti to explore FASD Life Coaching for yourself as an adult or as a parent of a little, or to arrange for professional development or community agency training on FASD, you can arrange for a consult at https://calendly.com/kaspertrainingandcoaching/consultation [https://calendly.com/kaspertrainingandcoaching/consultation] To order a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit books.by/yourfasdcoach [http://books.by/yourfasdcoach] or Amazon. (Both are print on demand at a printer near you, but books.by [http://books.by] offers its authors a few dollars more in royalties.) AJ’s resources: The Burnout Book, Emily & Amelia Nagoski: https://a.co/d/eJaSFDR [https://a.co/d/eJaSFDR] Sensory Checklist (.org is a broken link) Self-compassion quiz: https://self-compassion.org/self-compassion-test/ [https://self-compassion.org/self-compassion-test/] Dr. Kristen Neff’s site: https://self-compassion.org/ [https://self-compassion.org/]