PiCC Lounge

Susanna Van Tonder: Disability and Inclusion in Patient Advocacy

Join Susanna Van Tonder, patient expert, psychologist, advocate, and disability rights activist, as she shares her personal journey into patient engagement and discusses how she’s empowering young people to get more involved today

Meet Beatrice Credi from ELPA

Beatrice, the Head of the Brussels Office for European Liver Patients Association, speaks to us about the organisation and explores feel is the biggest opportunity and potential challenges for patient involvement. Listen to her perspective on how the digital transformation of healthcare could reshape the landscape and how to ensure involvement remains meaningful.

Jenny Bright ICHOM

Dive into an enlightening discussion with Jenny Bright from ICHOM (International Consortium for Health Outcomes Measurement). She introduces the organisation's work in standardizing health outcomes and reveals what she sees as the biggest opportunity, or challenge, for patients in the years ahead. Jenny also delves into authentic engagement, pushing for better representation and ensuring a diverse array of patient voices shape the future of healthcare.

Keith Berelowitz from PRXEngage

Tune in to listen to Keith talk about his organisation PRXEngage and their aim to support, signpost and guide patients into feeling more confident about taking part in Clinical Trials. Keith also shares his view on the biggest opportunities for patient involvement in the years ahead

Mandy Daly Irish Neonatal Health Alliance

Mandy from the Irish Neonatal Health Alliance introduces herself and explores the broad scope of their vital work supporting families, advancing research, and advocating for better neonatal outcomes.